free at last
Senior Member
- Messages
- 697
feel your pain, i know what its like to feel scared sick, and alone with the illness. It might not help sorry if it does not but heres what i did when i was much more chronically worse than i am now.
Sleep disturbance is one thing that helps the illness have total control. through the sickness, and anxiety that goes with it, often ME patients go into a bad pattern of very disturbed sleep. I did, it got so bad i was getiing about 4 hours deep sleep about every 48 at its worst. I wasnt a believer in anti deppresants helping. Mainly because even though yes i was deppressed ( how can someone not be when that sick ) If the illness was treated the depression would lift. So advice to take anti depressents felt like a insult to me.
However, what i didnt bargian on was the drug amitriptyline. Has a chemical that mixes with our own bodys sleep chemical to produce a double knockout effect, But it only really works when taken just as you are about to sleep. if taken hours before it wears off and the effect im going to describe will not work.
Right if 2 25mg Tablets are taken just as your going to sleep. If you then fall into a deep sleep. you will likely wake about 3 or 4 hours later, feeling like a ton of bricks. you will barely be able to lift your head off the pillow. just close your eyes and go back into a deep sleep.
The first time this happened to me ( i was very ill and desperate at this time ) i got 6 hours sleep the first time. wow i thought, never knew that it had a side effect like that, so i did it again the next night, same thing happened. another 6 hours sleep. wow 12 hours out of 48. Well i kept doing this, and i kept sleeping. did it stop the illness ? no it did not. Did it help with the exhaustion, and lack of sleep collapse feeling you bet.
And infact it was helping more than i realized, even though i knew it was a miracle back then. Something else plz try. Every time the symptoms get worse. Fill a plate with many different types of salad veg, beetroot very red tomatoes, celery spinnach water cress, radish deep red pepper avacado. as may different types you can find and tolerate. with that put oily fish, i used smoke salmon, crab prawns ect,I also after reading how raw garlic was a natural anti viral, ( in a dish viruses will grow away from garlic ) chop one or two raw cloves on the salad. yes its hard to eat, but it will help against these viruses.
If you cant eat a lot try half a tomatoe 1 radish small piece of beetroot, on and on untill all varities are on the plate.
Its not the amount to start with thats important, its the different types. as they each have there own chemicals and vitamins that can help fight viruses.. Do this everyday. or every other day. and especially when you feel really ill.
Eat as much as you can, untill you build up tolerance, I also too evening primrose oil. cod liver oil. a multivit. high strength vit C, magnesium, and calcium. at first this should all be fine as your likely seriously depleted in many of these things. But after a while cut back, because the food will also add these things. ( infact many other things the tablet form likely does not contain ) after about two years of this. i started recovering.
it was slow, i didnt even realize it was happening at first, but it was, the combination of complete rest, natural anti viral ( garlic ) vitamin and chemical releases into the body. will in time tilt the course of the illness. This will not cure cancer. but a persistent viral cause, will be eventually weakened. Because the body will become stronger,
I got my life back hurting, i thought at one time i was going to die. In not positive out of this regime, what helped the most ( likely all of it ) but the food, and complete rest with hours and hours each day of deep sleep. repaired my damaged immune system. I know it did.
Many say they can not tolerate amitriptyline, as it causes drowsyness. well thats exactly what you want it to do. when you wake after taking it. it will take a few hours before that drowsyness wears off. do not be worried by that. those that tried it for a couple of days a few weeks can not comment on what it did for me. Because it took at least two years of doing all this to really start to make a big difference.
At first it didnt stop the symptoms, but as the years rolled by. i noticed i was getting less crashes. they was weaker. and i recovered much faster. I can now go many weaks of being quite well. Even though i still have the virus that started all this. But my immune system recovered. and sort of figured a balancing act with the virus. not allowing it total control anymore.
I belive when the virus comes out of its dormant state. my immune system seems to put it back to bed, with just the right amount of immune attack. not too much. and not, less than is needed to do so.
You will not be intirely cured if your ME was similar to mine. but you will recover 80 to 90 % If it works for you the way it did me. Sorry if my advice doesnt help. i belive it will. but i could be wrong. Sorry if im wrong. But i dont know how else to help you. and i can only tell you my life experiance. ive lived with this for about 17 years. the first 5 years were there worst. But people can recover from this. can recover from whatever i had. Be it ME/CFS PVFS or something else.
Sleep disturbance is one thing that helps the illness have total control. through the sickness, and anxiety that goes with it, often ME patients go into a bad pattern of very disturbed sleep. I did, it got so bad i was getiing about 4 hours deep sleep about every 48 at its worst. I wasnt a believer in anti deppresants helping. Mainly because even though yes i was deppressed ( how can someone not be when that sick ) If the illness was treated the depression would lift. So advice to take anti depressents felt like a insult to me.
However, what i didnt bargian on was the drug amitriptyline. Has a chemical that mixes with our own bodys sleep chemical to produce a double knockout effect, But it only really works when taken just as you are about to sleep. if taken hours before it wears off and the effect im going to describe will not work.
Right if 2 25mg Tablets are taken just as your going to sleep. If you then fall into a deep sleep. you will likely wake about 3 or 4 hours later, feeling like a ton of bricks. you will barely be able to lift your head off the pillow. just close your eyes and go back into a deep sleep.
The first time this happened to me ( i was very ill and desperate at this time ) i got 6 hours sleep the first time. wow i thought, never knew that it had a side effect like that, so i did it again the next night, same thing happened. another 6 hours sleep. wow 12 hours out of 48. Well i kept doing this, and i kept sleeping. did it stop the illness ? no it did not. Did it help with the exhaustion, and lack of sleep collapse feeling you bet.
And infact it was helping more than i realized, even though i knew it was a miracle back then. Something else plz try. Every time the symptoms get worse. Fill a plate with many different types of salad veg, beetroot very red tomatoes, celery spinnach water cress, radish deep red pepper avacado. as may different types you can find and tolerate. with that put oily fish, i used smoke salmon, crab prawns ect,I also after reading how raw garlic was a natural anti viral, ( in a dish viruses will grow away from garlic ) chop one or two raw cloves on the salad. yes its hard to eat, but it will help against these viruses.
If you cant eat a lot try half a tomatoe 1 radish small piece of beetroot, on and on untill all varities are on the plate.
Its not the amount to start with thats important, its the different types. as they each have there own chemicals and vitamins that can help fight viruses.. Do this everyday. or every other day. and especially when you feel really ill.
Eat as much as you can, untill you build up tolerance, I also too evening primrose oil. cod liver oil. a multivit. high strength vit C, magnesium, and calcium. at first this should all be fine as your likely seriously depleted in many of these things. But after a while cut back, because the food will also add these things. ( infact many other things the tablet form likely does not contain ) after about two years of this. i started recovering.
it was slow, i didnt even realize it was happening at first, but it was, the combination of complete rest, natural anti viral ( garlic ) vitamin and chemical releases into the body. will in time tilt the course of the illness. This will not cure cancer. but a persistent viral cause, will be eventually weakened. Because the body will become stronger,
I got my life back hurting, i thought at one time i was going to die. In not positive out of this regime, what helped the most ( likely all of it ) but the food, and complete rest with hours and hours each day of deep sleep. repaired my damaged immune system. I know it did.
Many say they can not tolerate amitriptyline, as it causes drowsyness. well thats exactly what you want it to do. when you wake after taking it. it will take a few hours before that drowsyness wears off. do not be worried by that. those that tried it for a couple of days a few weeks can not comment on what it did for me. Because it took at least two years of doing all this to really start to make a big difference.
At first it didnt stop the symptoms, but as the years rolled by. i noticed i was getting less crashes. they was weaker. and i recovered much faster. I can now go many weaks of being quite well. Even though i still have the virus that started all this. But my immune system recovered. and sort of figured a balancing act with the virus. not allowing it total control anymore.
I belive when the virus comes out of its dormant state. my immune system seems to put it back to bed, with just the right amount of immune attack. not too much. and not, less than is needed to do so.
You will not be intirely cured if your ME was similar to mine. but you will recover 80 to 90 % If it works for you the way it did me. Sorry if my advice doesnt help. i belive it will. but i could be wrong. Sorry if im wrong. But i dont know how else to help you. and i can only tell you my life experiance. ive lived with this for about 17 years. the first 5 years were there worst. But people can recover from this. can recover from whatever i had. Be it ME/CFS PVFS or something else.
