All my fault?

[Sidereal]

@Hell...Hath...No...Fury.. Wow, I am really surprised and saddened to hear that. I am not in your country but was under the impression that Julia Newton was one of the premier ME/CFS experts in the UK from other threads. How could she not understand that you are bed and wheelchair bound and cannot do GET? That is disappointing to learn. Are you going to keep seeing her? I don't want you to end up injuring yourself trying to follow her treatment plan.

Her background is in geriatric syncope / orthostatic hypotension issues and she has an interest in OI and POTS. Judging from the papers she's written and a video presentation she gave (can't remember where I saw it), she doesn't have any real grasp of ME/CFS.

 

[MeSci]

She's not an ME/SEID specialist. Her primary interests seem to be OI and aging. She has done some solid and reputable research into ME/SEID, but in the context of OI thus far, and a bit regarding muscles I think. But I doubt she's ever taken a close look at the supposed support for using GET, nor the criticisms of it in ME/SEID.

She's probably looking at her ME/SEID patients purely as OI patients, and building up muscles is often useful for uncomplicated (non-ME/SEID) cases of OI.

I guess it's possible that, although she has demonstrated muscle abnormalities in ME/SEID, even in vitro, she hasn't grasped that the abnormalities can't be fixed by exercise. Building up muscles is indeed useful, but I have never succeeded in doing this with exertion - only with diet, supplements, rest and pacing.