Adrenaline after crash

Emmarose47

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I am Def noticing a pattern of when I come out of flare up ( currently a week ) . I sleep less and have huge surge of energy .... It's like my mitochondria goes yaaaà ... I'm learning to keep pacing and not to give into it ..
Is this common for us ?
 

xebex

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I have similar but in a different order. If I pace well enough I can get to a point of feeling pretty good, I will then be more active than normal, the day after I feel great (am assuming adrenaline is kicking in) so I am even MORE active and then the crash kicks in on the third day. I never ever learn and am currently in a big crash because of this :(
 

Emmarose47

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I have similar but in a different order. If I pace well enough I can get to a point of feeling pretty good, I will then be more active than normal, the day after I feel great (am assuming adrenaline is kicking in) so I am even MORE active and then the crash kicks in on the third day. I never ever learn and am currently in a big crash because of this :(
I hear you ...do your crashes tend to last the same amount of time ?
It takes a lot of self restraint to keep restraining when we've been restrained !
I liken it to the jailer coming along with his keys and says do u want 10 mins in the exercise yard or shall I let u go ....
Planning can be helpful for me ... Writing out a plan the night before .... Also recording what I've done sometimes it's eye opening to see I've done much more than I think ...
Using points system for activities also
 

xebex

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Big crashes can last 2 months, normal ones a few days. Over the last two months I experienced them for just a few hours then back to baseline after a good sleep. Don’t know why that has stopped happening and am back to bigger crashes now. So frustrating. Yes I liken it to some kind of tortuous jailer too.
 

Emmarose47

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Big crashes can last 2 months, normal ones a few days. Over the last two months I experienced them for just a few hours then back to baseline after a good sleep. Don’t know why that has stopped happening and am back to bigger crashes now. So frustrating. Yes I liken it to some kind of tortuous jailer too.
Bigger crashes for me indicate an accumulation of too much exertion ..
It's weird isn't it that patterns change and the body can hold off until later ...
I'm finding the symptoms overall morph and change ...
 

xebex

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yes for about two months i was doing much better and was exerting more even though it didn't feel like exertion and i got a way with it, it felt like I was improving. Totally demoralising, and now I'm in a depressed funk which makes it even worse.
 

Emmarose47

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yes for about two months i was doing much better and was exerting more even though it didn't feel like exertion and i got a way with it, it felt like I was improving. Totally demoralising, and now I'm in a depressed funk which makes it even worse.
Oh I'm sorry xebex
I know all of what u speak of ..
It's frustrating and like a hamster wheel ...but u know what we do progress .
I try hold gratitude for what I had and what I'll have again . I think of those who don't have remission and are living life from the bed I can't imagine ....
But yes the low feelings need holding and caring for because they are real .. sometimes the thoughts can get off kilter in a crash and it's part of it but thee don't always tell the whole truth .
 

xebex

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Aww thanks, yes super hard to just be compassionate with myself and remember it’s not my fault.

I find it really hard to stop the Adrenalin once it’s started but theanine does seem to help. I wonder if it would be helpful to you?
 

Emmarose47

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Ah ok I don't know it ...what is it and what does it do ?
Oh Def not our fault we just try to have some life ...sometimes I feel it's about accepting this thing will keep doing it's cycle ...
Some people do seem accepting of it ..
Of course the flip is if I manage better than I can get balance ....not succeeded yet !
 

keepswimming

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I struggle with adrenaline surges, however mine come before a crash not afterwards. For me if I push myself past a certain point, I go into an adrenaline surge I can't control. It feels like I've had ten cups of coffee - I can't rest, I can't sleep... And once the adrenaline wears off, I go into a massive crash. The biggest things that help me to avoid adrenaline surges are:
Pacing and staying within my limits
Keeping calm (I don't just mean stress - if I'm happy and excited that triggers adrenaline!)
Avoiding eating sugar/processed carbs

I find adrenaline surges incredibly hard to deal with, as I know it's wrecking my body but I have no control over it while it lasts - such a horrible feeling isn't it!

I recently came across this article about adrenaline surges in M.E. which I found helpful. I hope it might help you too.
 
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xebex

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Ah ok I don't know it ...what is it and what does it do ?
Oh Def not our fault we just try to have some life ...sometimes I feel it's about accepting this thing will keep doing it's cycle ...
Some people do seem accepting of it ..
Of course the flip is if I manage better than I can get balance ....not succeeded yet !
L theanine is an amino acid that helps produce GABA in the brain so can calm down your nervous system.
 

xebex

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I struggle with adrenaline surges, however mine come before a crash not afterwards. For me if I push myself past a certain point, I go into an adrenaline surge I can't control. It feels like I've had ten cups of coffee - I can't rest, I can't sleep... And once the adrenaline wears off, I go into a massive crash. The biggest things that help me to avoid adrenaline surges are:
Pacing and staying within my limits
Keeping calm (I don't just mean stress - if I'm happy and excited that triggers adrenaline!)
Avoiding eating sugar/processed carbs

I find adrenaline surges incredibly hard to deal with, as I know it's wrecking my body but I have no control over it while it lasts - such a horrible feeling isn't it!

I recently came across this article about adrenaline surges in M.E. which I found helpful. I hope it might help you too.
Oh yea the happy crash the most frustrating one of all - which is why I can’t socialize - I get too excited. If only the doctors understood. “You’re depressed” hmmm then why do I crash hardest when I’m happy?
 

hapl808

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Yeah - my adrenaline surges come just as severely from enjoyable socializing as they do from doctor's visits. Weirdly, my adrenaline surges usually feel really good while they're happening - my headaches and muscle weakness usually improves for several hours. Then I fall asleep and wake up feeling a bit hungover. Then a few hours later the real crash begins with migraines and muscle pain and…
 

keepswimming

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Yes socialising is definitely a big trigger for adrenaline... When I'm socialising I try to keep calm, and set alarms for when I need to take a break/stop socialising! As the adrenaline fools me into thinking I'm doing OK in the moment, so I don't always remember. The alarms prompt me to stop.