Hi guys
I haven't posted a lot on here really so hello to everyone. I was wondering if anyone could relate to these symptoms I get - as on my other forum noone had heard of it.
Basically I get these attacks that I call "the judders". It starts with a wooshing, like butterflies in my chest or that feeling when you drive too fast down a hill. Then I go really lightheaded and my blood pressure drops and the wooshing spreads up and down my body, arms, legs - like an esctacy rush gone wrong. And my whole body starts to tremble and shudder and I feel this feeling of FEAR, intense fear and panic and I cannot sit still, I figit about like I am crawling out of my own skin. Then my heart rate goes mad and has been recorded at 140 bpm.
My doctors equate this to a panic attack/depression/social phobia, the usual story for M.E sufferers.
So my parents sent me overseas for tests as my doctors refused to refer me for any endocrine testing despite a year of symptoms and me blacking out all over the place and it turns out I have low cortisol, ACTH Insufficency and they ran a 24 hour urine test to check the adreneline levels in my body which came back inconclusive.
One doctor said it could be POTS related the other said it might be a tumour on my adrenal gland. But neither specalist had heard of these symptoms before. Before I flew back to the UK the doctor said it was important I get an MRI on my adrenals.
I am completely baffled as to what the cause might be. My heart rate sits at 110bpm resting and goes up to 140/150 when doing really normal things like boiling the kettle. It's all getting worse.
I am in the process of being referred to a POTS specalist but my GP is still refusing to refer me to an Endocrinologist and my parents are going mad.
I haven't posted a lot on here really so hello to everyone. I was wondering if anyone could relate to these symptoms I get - as on my other forum noone had heard of it.
Basically I get these attacks that I call "the judders". It starts with a wooshing, like butterflies in my chest or that feeling when you drive too fast down a hill. Then I go really lightheaded and my blood pressure drops and the wooshing spreads up and down my body, arms, legs - like an esctacy rush gone wrong. And my whole body starts to tremble and shudder and I feel this feeling of FEAR, intense fear and panic and I cannot sit still, I figit about like I am crawling out of my own skin. Then my heart rate goes mad and has been recorded at 140 bpm.
My doctors equate this to a panic attack/depression/social phobia, the usual story for M.E sufferers.
So my parents sent me overseas for tests as my doctors refused to refer me for any endocrine testing despite a year of symptoms and me blacking out all over the place and it turns out I have low cortisol, ACTH Insufficency and they ran a 24 hour urine test to check the adreneline levels in my body which came back inconclusive.
One doctor said it could be POTS related the other said it might be a tumour on my adrenal gland. But neither specalist had heard of these symptoms before. Before I flew back to the UK the doctor said it was important I get an MRI on my adrenals.
I am completely baffled as to what the cause might be. My heart rate sits at 110bpm resting and goes up to 140/150 when doing really normal things like boiling the kettle. It's all getting worse.
I am in the process of being referred to a POTS specalist but my GP is still refusing to refer me to an Endocrinologist and my parents are going mad.