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hello World,
I'm a very Bad vicious Circle and have no ideal How to get out. Maybe some of you have any idea.
I have a very Rough combination from MCAS, several Adrenal Fartigue and mitochondria dysfunction, which all together Ende up in CFS and MCS.
Now I ve tried hydrocortison which gave me adverse effects (as nearly always). The good effect of the hydrocortison: energy, clearer mind, my muscles started to relax and so my spine segments stoped blockading everyday (which they do since 20 years. Because the muscles have to less energy to relax properly), I could sleep and so on.
On the other hand my mastcells went crazy and after 2-3 weeks and an additional flu I nearly got an anaphylactic shock. So I had to stop the cortison and now I'm bed bound.
I'm fighting since I'm 17. now I'm 37 and it took me 17 years to understand what s going on. Unfortunately it's to late now. It feels like.
Does anyone has any ideas or experience with mastcellactivationsyndrom/disorder and taking or not tolerating cortison? Is it the cortison ? Is it the fillers ?
Thank you so much for your help and ideas.
Jasper
I'm a very Bad vicious Circle and have no ideal How to get out. Maybe some of you have any idea.
I have a very Rough combination from MCAS, several Adrenal Fartigue and mitochondria dysfunction, which all together Ende up in CFS and MCS.
Now I ve tried hydrocortison which gave me adverse effects (as nearly always). The good effect of the hydrocortison: energy, clearer mind, my muscles started to relax and so my spine segments stoped blockading everyday (which they do since 20 years. Because the muscles have to less energy to relax properly), I could sleep and so on.
On the other hand my mastcells went crazy and after 2-3 weeks and an additional flu I nearly got an anaphylactic shock. So I had to stop the cortison and now I'm bed bound.
I'm fighting since I'm 17. now I'm 37 and it took me 17 years to understand what s going on. Unfortunately it's to late now. It feels like.
Does anyone has any ideas or experience with mastcellactivationsyndrom/disorder and taking or not tolerating cortison? Is it the cortison ? Is it the fillers ?
Thank you so much for your help and ideas.
Jasper
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