Hoosierfans
Senior Member
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- 400
Wanted to respond to this older thread and get some feedback. So this time last year I started acyclovir (500 mg 2 x day) and got some immediate benefit but it started to fade after a week or so. My doc (who is not an ME / CFS doc) bumped me up to Valtrex, also at 500 mg 2 x day.
I was on that for about 4-6 weeks with no change in symptoms, so my doc wanted me to stop it (we then pursued mold stuff).
I am now revisiting the idea of an anti-viral trial because clearly I didn’t try it long enough or high enough doses. I never tried Valgancyclovir or Famvir. I also never worked up to more that 1000 mg / day of the Valtrex.
If I can convince my new doc to make another run at anti-vitals, how to folks work up to the doses suggested by Lerner / Montoya. @Hip or @Lerner1 any thought there? Should I make another run at Valtrex but just up the dose? Or start out anew w Famvir or Valgancyclovir?
Attached below are my labs from October 2018. My results done in January 2020 were identical except my Early Antigen was negative (I believe, my doc told me but I haven’t seen it)
I was on that for about 4-6 weeks with no change in symptoms, so my doc wanted me to stop it (we then pursued mold stuff).
I am now revisiting the idea of an anti-viral trial because clearly I didn’t try it long enough or high enough doses. I never tried Valgancyclovir or Famvir. I also never worked up to more that 1000 mg / day of the Valtrex.
If I can convince my new doc to make another run at anti-vitals, how to folks work up to the doses suggested by Lerner / Montoya. @Hip or @Lerner1 any thought there? Should I make another run at Valtrex but just up the dose? Or start out anew w Famvir or Valgancyclovir?
Attached below are my labs from October 2018. My results done in January 2020 were identical except my Early Antigen was negative (I believe, my doc told me but I haven’t seen it)