chat with Dr Klimas
I had a chat with Dr Klimas yesterday about my test results
Positive for EB-EA IgG ,actively replicating EBV
Negative HHV6 IgG
3 x normal range Tumor Necrosis Factor
Flow cytometry profiles and panels: extra antiviral cells, T cells 4x normal and shift from naive to memory T cells
Have some functioning NK cells but below the lower range of normal.
The above is from conversation rather than written results.
We discussed a specific antiviral, Valcyte for the EBV, Dr Kerr's clinical trial of monoclone antibodies, embrel, a prescription for pentoxicillin and large dose omega 3. Decided to gradually up my dose of omega 3 to reach 4000-6000 mg/day.
Also to try to get my GP to prescribe Immunovir.
I told her that B12 sublingual appeared to be working, but initially made me feel hyper wound-up like
too much thyroid medicine and liothyronine in particular.
Her explanation was that without the sublingual B12 my cells were hypometabolic and the B12 made
the thyroid meds (more available? more active?) so I probably needed to review my thyroid
prescriptions. In the distant past I had been convinced that much of my M.E. was caused by
insufficient thyroxine/liothyronine(T4,T3) so I tweaked continually and adjusted it to try to control
symptoms as per Dr Lowe's book. This never had any lasting effect. Interesting to me that the
seeming lack of T4,T3 was probably because of changes in my cells rather than in my thyroid gland.
Lastly we talked about BP, I'd recently monitored BP during a crash
95/45 sitting on bed
130/80 after standing for 4 minutes
99/66 after sitting down again for 4 minutes
She suggested drinking something like Gatorade, Lucozade here in the UK, first thing in the morning
and if droopy after lunch have another bottle and continue to measure BP for changes.
Apparently there is a feedback loop between the autonomic nervous system and inflammatory
responses. Haven't had time to look this up.
All good stuff
