Thanks for the tip Koan
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Has Dr Nancy helped you alot? She appears very friendly and wonderful on the videos I've seen. It still seems unreal that I am going to her clinic.
If I get to South Beach I will Definitely go to Joe's
I'm glad to hear that your visit to Dr. Klimas's clinic went well. I'm also glad to hear that both sublingual B12 and folic acid were included in her recommended treatments. I feel that I must let you know that folic acid is not the best form of folate to take. Many people's bodies are not able to convert it very well to the biochemically active forms of folate, and it is necessary to have sufficient levels of both the biochemically active B12 (such as the methytlcobalamin in the supplement you ordered, or hydroxocobalamin, as in the protocol I have suggested, but not cyanocobalamin) and folate to lift the methylation cycle block in CFS. So you might consider asking Dr. Klimas about either folinic acid, or better yet 5-methyl tetrahydrofolate, which is sold as Metafolin or FolaPro. If she agrees to your making this substitution, and if you have sufficient dosages of both the B12 and the active folate, I think you will be likely to have a better treatment response. I have communicated with Dr. Klimas about my Glutathione Depletion--Methylation Cycle Block hypothesis for CFS for quite a few years, and I'm happy to see that she is recommending an active form of B12 as well as a form of folate, but as I say, an active form of folate would be preferable to folic acid, in my opinion and in my experience.
Rich Van Konynenburg
My Dr upon my last visit suggested Folinic Acid, so I looked at some Folic Acid picking up a prescription and asked the Pharmacist at CVS what the difference was? He looked it up and said my Dr (CFS) must have been mistaken because it is usually only prescribed for cancer patients. If I recall correclty? I still need to email my CFS dr about that. Seems like he needs to write me a script? I am willing to try it, I trust him so much, he has helped me a lot and is very supportive. Seems very knowledgable also! Been with him for over 1 year now.
Does she want you to do things in a certain order?
I thought I read on another thread where she wants a patient to start out with Immunovir.. and raise NK cells (or activity ...wasn';t clear to me) before introducing other drugs, .... in this case LDN.
Interesting that she recommended Equilibrant... Dr Chia's txt for enteroviruses.
Has she tested you for enteroviruses?
Yes, first increase the omega 3 to a dose of 4-6000/day and then do a trial of imunovir.