A seemingly unexplored simple explanation for ME/CFS and my experiments with it

[Tsukareta]

Hello again, after having increasingly crazy problems for a couple of years that i've mentioned in detail before so I wont go into, I was doing more and more research and trying many supplements and a few tests, particularly I tried herbs but also have tried stuff like liposomal glutathione and GABA and CoQ10.

Anyway I went and lived ina tent for 8 months in the garden because I was having MCS and so hypersensitive to mold, if I sat in some places in the garden I was ok but certain spots were bad e.g. right next to the house, its was not a fun time, after a few months I saw an improvement, particularly as it went into July, thankfully there was only one heatwave in June, as I don't do well with them AT ALL, we had another one in early september but that wasn't too bad. Being stung by a wasp seemed to suddenly improve many things, no idea why.

I took loads of herbs to kill candida and removed sugar from diet, slight improvement, did SIBO testing with an AIRE2 then I did the biomesight microbiome test, which showed massive deviation in about 30% of my bacteria species, notably desulphovibrio which was way off the scale, extremely high, confirming that my SIBO was mostly the hydrogen sulphide type. Anyway things stabilized and I realized I also probably had thiamin deficiency, so I did high dose thiamin and again improved.
Tent went a bit moldy in December though so I was forced to move indoors into a 'safe room' that I had been slowly working on all year. Health got slowly worse after 2 to 3 weeks back in the house though and I started to want to move outside again.

Anyway for reasons you can probably imagine and also my dad having a return of cancer after 18 months I started to become totally disillusioned with conventional doctors and decided that pretty much I never want to rely on them again. From the influence of Elliot Overton on Youtube who taught me about thiamine with his videos and also sold me the TTFD pills I became interested in alternative medicine, particularly the idea of structured water, this eventually lead me down a bunch of different things and thats how I got to what im going to describe.

Theres a book called " The cure for all diseases " by Hulda Clark, which was written in 1995. " I got this because I was looking for more instruction on how to perhaps utilise my Spooky2 Rife machine, a sort of alternative medicine energy healing machine that uses electrical frequencies, and well the book advertised itself as containing a cure for 'chronic fatigue syndrome' which as we know can mean different things to different people, but I was interested in finding out about how this frequency technology was developed, and I knew that Clark had invented a machine called a 'zapper' and that some people who have appeared in videos discussing Spooky2 had also tried this inexpensive 'zapper' machine.

Anyway to cut to the point, Clark says that CFS is caused by a burden on the function of the liver caused by a type of parasite called a 'fluke' which can be transferred from animals to humans, and that it can take residence in some people when their bodies are polluted with specific toxins, she explains many of these toxins which are things I didn't not really consider before.
I was more interested in physics and chemistry at school but I did take biology as an 'A level' subject at a specialist science school and I have never heard of these parasites, nor have I heard of them mentioned in the context of CFS, a search of the Health Rising website seemed to yield no results at all about it either.

So I ran the 30khz zapper program and also killing frequencies specific for this parasite and it was interesting because I got a mild pain my liver which seemed to persist until the next morning, and as I continued to apply the electricity the discomfort has continued for a few days, now this did NOT happen with any of the frequencies etc that I had been running for the week or so prior that were detoxifying my body, or killing viruses like EBV, CMV, HHV-6, Coxsackie etc. My energy does appear to have improved although I am consistently moderate in CFS and I have ups and downs. It will take some time to know whether this actually 'cures' the disease, because apparently I also need to do a 'liver cleanse' to expel all of the little stones and stuff, but so far I haven't researched how to go about doing this. I just have a good feeling about this one so I thought I would try and share.

 

[linusbert]

Anyway to cut to the point, Clark says that CFS is caused by a burden on the function of the liver caused by a type of parasite called a 'fluke' which can be transferred from animals to humans, and that it can take residence in some people when their bodies are polluted with specific toxins, she explains many of these toxins which are things I didn't not really consider before.

thats probably the 2nd most crazy theory and therapy i heard for cfs.
the first one was a orgonbeam thingy which should be pointed towards me and somehow transfer energy and heal by non scientific or anything near scientific or nature science explainable theory.
but i did it for a weekend, then the doctor wanted the device back and i didnt want to buy it because it was freaking expansive and i suspected it to be a scam anyways.

well if this fluke infection was a thing, why not try a anti parasitic medicine? ivermectin?

but keep us posted, i want to hear how this story develops.

 

[lyran]

This reminds me when I was with bioresonance therapist a few times. Everything else was cleared with herbs she suggested for things that were found on scan but one thing that never did clear was clonorchis sinensis which is a liver fluke. Heck, I don't even know if bioresonance works but just saying.

I also use Spooky2 device in remote mode and have noticed that one frequency-set I get the worst herx reaction is used to clear toxins from liver.

 

[hapl808]

thats probably the 2nd most crazy theory and therapy i heard for cfs.

Sadly, this world is so weird that I'm already familiar with that theory. I tried some rife machines and such in the late 90's early 2000's without much luck. I always had other people running them so I never personally went down the rabbit hole. It all seemed so nonsensical to me to begin with, but I was already disillusioned with doctors' inability to or even interest in helping me.

Our lack of ability to properly treat MCS or mold or whatever it is - incredibly frustrating. I had a period where everything caused a reaction and I did the same thing where I couldn't live at home, kept bouncing to different places, and of course no one understands and they just assume you're crazy.

Sorry you're going through this.

 

[Zebra]

Thought it might be helpful to have a link to Liver Fluke infection:

https://www.cdc.gov/parasites/liver_flukes/index.html

 

[linusbert]

Thought it might be helpful to have a link to Liver Fluke infection:

https://www.cdc.gov/parasites/liver_flukes/index.html

"While most infected persons do not show any symptoms, infections that last a long time can result in severe symptoms and serious illness. Untreated, infections may persist for up to 25–30 years, the lifespan of the parasite."

YIKES, but it resolves itself in 30 years.. (maybe in alcoholics and drug addicts faster *joking ^^).

for me, doctors found a gallbladder polyp , they say it could be a polyp or a bent blood vessel... but maybe its a fluke?? i dont know where i would have gotten that but kids eat all kinds of shit so it isnt totally impossible.
maybe time to start a round of ivermectin?
or maybe wait another 20 years, they found that like 10 years ago.
but then again, it wasnt visible when gallbladder was contracted after eating. i dont think the worm would shrink no matter if gallbladder is full or not.

but the intersting thing is, if this thing makes someone go CFS , and then it dies, it can look like a miraculous remission.

 

[Tsukareta]

Maybe we would have had more luck if we went to a vet rather than a doctor there is a medication for this parasite, called triclabendazole, I think theres a few others. I think conventional drugs can have nasty side effects though and its not easy to get random ones in the UK without a doctors help.

In the book she recommends black wallnut hull tincture and I think thats good because I already knew about it from some of my candida pills, she also seems to recommend a combination of that with wormwood and cloves, again I knew about wormwood because its in the Candi-away supplement, so I have consumed both many times but perhaps not in the quantity needed to be effective. These parasites live in a strange place as I wonder if many of the herbal substances would be absorbed by the liver before they reached it, probably need one that affects the whole bloodstream ? the zapper device is the first go to solution.

In the book she talks about different types of parasites so perhaps that concoction of herbs isn't applicable to the liver one. I wanted to test my exercise capacity again this morning but the air pollution issue has appeared again, it comes over here from another continent sometimes, the AQI is over 60 and I don't get on well with that usually, I have 3 air purifiers in this room, one of them is a carbon one that in theory works like those big Austin Air ones that are really expensive, but mine is a DIY thing made from a agricultural / industrial carbon canister.

I will say that I went for a walk twice intentionally yesterday to the next street and back which is about 1/4 of a mile, I didn't want to overdo it, I also went around the supermarket but thats normal for me at the moment. The last time I went for a walk intentionally was about 5 days ago and it gave but pretty strong PEM for the first time in ages, but that was 1/2 a mile and I had walked across a big field pretty fast that morning because I was always curious about that field and I cant get my e-bike past the fence.

When I was really ill last year it seemed to mask the underlying CFS because I just had constant fatigue that meant I hardly ever wanted to do anything i.e. I couldn't even use enough energy to give myself PEM, it was pretty odd but it also helped me understand why people can confuse other fatiguing diseases with CFS.

This reminds me when I was with bioresonance therapist a few times. Everything else was cleared with herbs she suggested for things that were found on scan but one thing that never did clear was clonorchis sinensis which is a liver fluke. Heck, I don't even know if bioresonance works but just saying.

I also use Spooky2 device in remote mode and have noticed that one frequency-set I get the worst herx reaction is used to clear toxins from liver.

Thats how I got into it because I randomly saw an interview with a woman on Youtube that offers that service, I looked up the machine that she was using and saw one for sale for 5000 pounds, I said to her that im the type of person that would copy how the machine works and build it myself for half the price and she said that it was probably all of the data in the software that makes it valuable not the electronic hardware itself. The spooky machines are not that expensive, I tried to pick a combination of products and it came out to about 250 dollars for one machine with the attachments to perform contact and remote mode.

The Hulda Clark Zapper is probably worth about 10 to 20 dollars though, its just using a 9v battery that runs through a '555 timer' integrated circuit to produce a high frequency wave, with the outputs connected to some metal pipes, again she shows the circuit diagram in her book but I also found examples on Youtube, I could probably make the zapper with the stuff I have in my house already in a few hours for free, they are selling them for about 50 pounds on Ebay, sometimes more.

 

[linusbert]

Thats how I got into it because I randomly saw an interview with a woman on Youtube that offers that service, I looked up the machine that she was using and saw one for sale for 5000 pounds, I said to her that im the type of person that would copy how the machine works and build it myself for half the price and she said that it was probably all of the data in the software that makes it valuable not the electronic hardware itself. The spooky machines are not that expensive, I tried to pick a combination of products and it came out to about 250 dollars for one machine with the attachments to perform contact and remote mode.

i sell special health air coming from the dark side of the moon known for its instant heal anything properties, i call it "instant health moon air". its cheep, only 7000 $ for a 1 Liter bag. secretive prototype spacex rockets are mining it from the dark side of the moon, filling the air from there into a bag and bring it back. nobody sells as cheap as i am.
wanna order? sent me a pm.

actually its all in early stages, in the beginning i fill my living room air in a cheep plastic bag and ship those... but for sure in the future i will sell the air from the moon!!
moon air will be the next big medical discovery for sure!

 

[lyran]

In the book she recommends black wallnut hull tincture and I think thats good because I already knew about it from some of my candida pills, she also seems to recommend a combination of that with wormwood and cloves, again I knew about wormwood because its in the Candi-away supplement, so I have consumed both many times but perhaps not in the quantity needed to be effective. These parasites live in a strange place as I wonder if many of the herbal substances would be absorbed by the liver before they reached it, probably need one that affects the whole bloodstream ? the zapper device is the first go to solution.

This may be true. My bioresonance therapist suggested using Catuaba for clonorchis and its eggs. Everything else was cleared with the herbs she told me to use so I'm pretty sure Catuaba is effective for it but maybe it didn't reach the parasite.

Have you tried using Spooky2 in contact mode and connecting the pads near to your liver and running appropriate frequencies?

 

[Tsukareta]

There was a guy in another video that was also promoting his service which was similar to the previous bioresonance machine except this time he was saying that instead of a DNA sample you could just send him a photograph which he would print out and by putting it near the energy field created by the machine it would transmit it to your body which I thought was hilarious and I wanted to say something socially inappropriate but I thought better of it .

I did connect the pads halfway up my torso and run the zapper program, but it was attached to the colloidal silver port of the machine, im scared to do it with the high power port because its closer to the heart, but I think this is an approved use from what I saw, usually with the Clark Zapper you hold it in each hand which I have done including on the high power port. You have to be a bit careful with the Spooky 2 because on some presets and program combinations the contact mode can give quite a good electrocution effect, enough to make you want to quickly disconnect it or press the stop button, if that happens its a sign to change it over to the other port, which apparently has a 10 KOhm resistor. I wonder if this machine has some kind of electronic current limiting feature, I'm not sure.

I don't think im necessarily cured yet but I do feel like im closer to the mild category of CFS than I have been in the past 6 months, I haven't been mild since 2016 but I could walk pretty far in 2019/ 2020, but not without some kind of kickback which of course stacks up the more you do it. In general I feel more 'normal'
than usual and it doesn't feel like im going to get bad PEM even if I really push it, though I might get other symptoms flaring up, I don't really care as long as my MCS and mold sensitivity doesn't flare up.

So far I walked 3/4 of a mile this afternoon but im splitting it up into 3 trips rather than 2 because I want to be on the safe side. Usually I rely on electric power to get around and then I just walk short distances, always staying within my limits, rarely do I pedal its only on steep hills or when the battery gets low and I worry I wont make it back, but even then I am careful not to overdo it and theres often times where I cant bear to turn the pedals at all.

 

[brenda]

I have used spooky 2 successfully for a number of things like, pleuricy, fractured toe, gall bladder pain, but I don't think it is useful on its own for MCS or CFS. I don't bother much with it but if I had an infection it would be out immediately.

 

[HRManager]

How do y'all afford these machines.. I would love to try one but jeeeeezus they want $2000+ for them

 

[linusbert]

How do y'all afford these machines.. I would love to try one but jeeeeezus they want $2000+ for them

save a bit more and you can buy my moon air for 7000$ , its much better, its from outa space!!

but if you wanna try such a device, why not ask someone to lend it to you for a few days? find a doctor?
i got mine for testing over a weekend.

 

[lyran]

How do y'all afford these machines.. I would love to try one but jeeeeezus they want $2000+ for them

If you mean a rife machine, you can get Spooky2 (which is mentioned several times in this thread, probably because it is one of the cheapest ones) remote kit for $166 + postage cost. No need to spend more than that if you have a Windows PC to operate the software from.

 

[lyran]

I have used spooky 2 successfully for a number of things like, pleuricy, fractured toe, gall bladder pain, but I don't think it is useful on its own for MCS or CFS. I don't bother much with it but if I had an infection it would be out immediately.

I agree. Also if you are low on for example neurotransmitters or endorphins, you can use those frequencies like dopamine or metenkefalin

 

[Tsukareta]

I will show the video which explained to me about the concept of bioresonance although what i'm using is a more primitive 'DIY' approach than what this lady claims to perform. Going into this my impression was that ME/CFS hasn't been cured so far at least on a large scale because of some kind of fundamental assumption about disease or biology made by scientists / doctors which is incorrect therefore they never find the problem.

With the spooky 2 machine instead of getting one of the kits you can just get the remote one like lyran said and then seperately add the TENS cable and TENS pads so you can do contact mode. I was feeling that the stainless steel cylinders are not very useful because holding onto them for hours is not a thing really, but they do actually seem to be superior to the TENs pad for using the Clark Zapper mode of the Spooky 2 machine, I tried using the zapper with the pads yesterday and it made my hand sting and itch because the electric current is flowing through too small of an area. The cylinders are also infinitely re-usable whereas I noticed the sticky pads tend to pick up fluff from my sock quite quickly ( I usually attach one to my left ankle and one to the underside of my right hand or arm ).

I was looking more at those liver flukes yesterday and they are actually way bigger than I expected, I thought maybe 1 to 2mm or smaller, so as not to be visible on scans, but these things can be 1 or 2 cm long !!! its quite 'urgghghghgh ' if you see the images of it inside someones body. And theres different types, not just clonorchis, the one im more concerned about is Fasciola Hepatica, which comes from cattle. Officially you are only meant to be able to get this from eating water cress, which is an unlikely cause for me, but Clark says you can get these parasites from eating meat, presumably if its a bit undercooked and the parasite is right in the middle, more info needed about that. I wonder if there are other transmission methods we just aren't aware of. Supposedly this parasite is most prevalent in the UK where sheep farming is very common, and thats where I live, but I haven't personally handled any sheep as an adult, nor cows.

One of the only findings they got for me early one was consistently raised liver ALT readings, which is consistent with liver damage. There was never any strong evidence of chronic viral infection or breakouts though I did feel like it when severe. Apparently in blood tests more recently that liver function issue doesn't show, which is strange. I'm having a rest today because I think the air pollution yesterday whacked me a bit, but I did walk 1 mile yesterday after walking 1/2 a mile the day before and also going to the supermarket and thats less than a week after getting heavy PEM from doing similar walking. Muscles still feel light and not aching, only thing that seemed to make them ache is when the pollution came back yesterday evening ( its completely gone now because the wind direction changed ). If anyone has experienced a temporary spontaneous 'remission' from CFS you can probably imagine what I mean by saying my body feels a lot more 'normal', for me those remissions were rare and only ever lasted 5 or 10 minutes.

 

[lyran]

And for those who aren't able to watch an hour long video, basically "Spooky action at a distance" just means quantum entanglement. In quantum physics distance doesn't matter, energy travels instantaneously. Remote energy healing works by the same principles. Also everything has it's own frequency in the universe and this opens a whole new area in science when we begin to understand it.

I know many don't believe in these things and it's ok, it is your choice. But being too sceptic may sometimes avoid you from moving on.

 

[Tsukareta]

Update on this topic - no i'm not cured ! but leg muscles do still feel better and physically bigger than usual which is a break from convention, the limiting factor seems to be nerve function and subsequent SIBO flare, after walking 1 mile in 1 day I started to feel very tired, in the conventional sense, not PEM. I noticed numbness / tingling and strange behaviour of the stomach that night which seems to indicate either nerve damage from toxins produced during exercise, or thiamine depletion across the cells of the body, either way it caused that strange sensation, which isn't new, and since then a mild SIBO flare which reduced my appetite and made me reluctant to use much energy.

For the first 5 years of CFS I had no obvious SIBO though, and when I overdid it with walking and gave myself bad PEM recently ( before doing the Clark Zapper parasite kill and specific rife freqs for Fasciola ), I didn't experience this change in nerve function and SIBO flare. My next step is to buy the more expensive Generator X which has the hardware to do true biofeedback, which might allow me to find my core issues. The Spooky Pulse addon is just not cutting it for me, because it will often flash multiple times per heartbeat even once I get it to detect the pulse reliably and im lying down trying not to trigger its ( electrostatic ? ) sensor.

I'm running the SIBO program in the Spooky 2 software for the first time now to see how it is, previously I found I got some relief just by playing the audio frequency recordings they provide online through a portable speaker that I put just in front of my stomach, which makes a lot of sense when you are trying to achieve nerve stimulation. I usually get good results from drinking chlorine dioxide solution aka purified MMS at about 10 to 15ppm but on this occasion it didn't seem to touch it, which is what I would expect if there was significant disruption of nerve function. I don't know why my liver hurt a bit or whether or not I had the parasites but I still intend to take black wallnut hull and wormwood and cloves, NOW food seems to do a good one which has all 3.

 

[lyran]

My next step is to buy the more expensive Generator X which has the hardware to do true biofeedback, which might allow me to find my core issues.

I also ordered Generator X with sample digitizer last week for the same reason. It is also more handy because you can load up to 30 programs into it and run them without a computer.

It was very expensive so I just ordered the generator without other addons. I can use Boost and Remote that came with my older XM-Generator. But I have spent much more money on herbal supplements that didn't do anything. At least I know that Spooky2 is beneficial.

 

[almost]

This is quite intriguing, and I'm tempted to try it out. My hesitation stems from what I find on the Spooky2 website, however, (bolding is my own):

Spooky2 Central can provide you the fastest and most effective treatments for your serious conditions like Lyme and etc.


Spooky2 Central is the most powerful Rife Machine in the world. It has 4 ways to apply the frequencies, plasma, ultrasonic, PEMF coil and contact.


It can deliver frequencies to your body via powerful electromagnetic waves. It’s the only machine we know of that can transmit frequencies of up to 3,500,000Hz without needing any wasteful and potentially harmful fixed carrier frequency.


With four modes combined together, most serious problems can be helped if the right frequencies are applied.

That's a pretty big "if." So how do you know what the "right" frequencies are?