Stone's post, taken from the thread "does anybody feel better when they don't eat?"
****I definitely feel much better when I don't eat. This was brought home to me very clearly after undergoing "RnY" gastric bypass surgery in 2004. Beginning about two days after the surgery, while still in the hospital, I was amazed that my symptoms seemed to spontaneously disappear (virtually), which was the opposite of what I had expected having undergone other (unrelated) surgeries in the past and the major flares that had always followed. At first I thought the amazing reduction of symptoms was merely due to the big emotional relief from the stress of anticipating a quite dangerous surgery, and having the scariest part behind me. But as I continued to recover from the surgery itself, being on an entirely liquid diet, the near total cessation of ME/CFS symptoms continued, to my utter amazement and joy. This all started well before any major weight loss began in earnest, before any symptom relief could be attributed to weight loss.
At my 6-week follow up with the surgeon, I happily told the surgeon about the near total remission I was experiencing. The surgeon replied that (get this) he sees this happen in most of his patients with Fibromyalgia and Chronic Fatigue Syndrome. When I queried as to why the good doctor didn't mention this to me before the surgery, he said that since it doesn't happen with every patient with my illness, he didn't want to falsely elevate my hopes, which seemed like a reasonable cause for not mentioning this phenomenon to me. The doctor also added that the remission of symptoms usually subsides about 9 to 18 months after the surgery, and cautioned me not to be overly disappointed if this is the case with me as well (as if disappointment could be somehow avoided in such circumstances, lol).
True to the surgeon's prediction, my symptoms did slowly and gradually return beginning at about 9 or 10 months postoperatively, with a return to my pre-surgery level of ME/CFS symptomatology (minus whatever degree of ME/CFS/FM symptom aggravation previously caused by the amount of excess weight I had lost at that point) at about 15 months post-op. By this time, I was able to take in a good deal greater volume of food than was possible in the months immediately following the surgery. Typically, after the procedure I had done, a person is only able to take in a few ounces at a "meal", an amount roughly the volume of a shot glass or two, depending in what is eaten. By about the time a year has passed, one is typically able to take in around 4 to 8 ounces in volume at a meal but this varies considerably from one person to the next and from one food to another.
Now, almost 7 years later, it is possible for me to eat amounts similar to 'normal' people from time to time, but not consistently, and it depends highly on what the food is, but I would have to struggle to do that. Most of the time, I eat can only very small portions (6 to 20 bites per meal, depending), and I still find that the bypass surgery notwithstanding, I feel much better when I eat much less, as along as I take my vitamin supplements. If I don't take my vitamins, and plenty of them, I'm incredibly sick. Now, my ME/CFS is the worst it's been since its onset in 1995, including those first two nightmarish years. I do find that the less I eat, the better I feel. Also, I have recently taken to periodic fasting (for spiritual purposes), and I find this to be a beneficial practice for me both spiritually and physically. When I allow myself to eat at the maximum that I can comfortably eat, even with the reduced capacity afforded by my altered gastric architecture, I don't feel nearly as well in terms of my ME/CFS symptoms as I would if I were to eat a bit less that I am capable of eating or if I am on a periodic fast. I do have to watch that I am taking in enough to maintain my weight, as I do not need to or desire to lose any more weight.
I really feel this should be studied, in particular the amazing phenomena experienced by myself and many others immediately after gastric bypass surgery. The surgeon actually expected my remission and wasn't surprised in the least when I reported it to him. Food for thought ;-)****
Am I the only one to find this interesting? That, according to Stone's surgeon, the majority of CFS and fibro patients experience a near total remission of symptoms following gastric bypass? How can this fail to pique curiosity? Well I suppose I'm excited this is further evidence of the theory I posted earlier in this thread: that the spark leading to immune activation occurs within 5-10 minutes of eating, while (as Cort points out in the Logan interview) food should still be in the stomach.
So two days ( the number I was throwing around was three) following surgery symptoms lift and energy returns -without supplemental B12, CoQ10, GSH, etc. Surely infections are still in place, the difference is the refractory immune system has been calmed. What this spark is I'm not sure. I believe it's in the signaling as the digestive process begins, and the bypass surgery alters this, although not optimally. Which might explain why symptoms usually return between 9-15 months post-op. TPN would halt the digestive process completely while the body is continuing to be nourished. This latter point is of the utmost importance: why would our systems normalize energy while fasting when it has been trained to save energy for the inevitable slaughter of immune activation that'll come with the next meal?
The other point to address is that the surgery does not induce remission in a minority of patients. Perhaps this can be explained by environmental sensitivities and/or biotoxin exposure, as we've mentioned earlier in this thread. Maybe for some of us this needs to be addressed simultaneously.
Calm the immune system and nourish the body, the best way to turn the tables (normalize redox) on the pathogen causing the problem. XMRV?
