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Hi everyone! I sent a video link to a friend of mine anout the Rituximab trials and a friend of hers saw it and became fascinated my CFS. He works as a programmer for medical software, and a few days ago he asks her out of the blue if my mother was sick while pregnant with me.
It was a fairly surprising question, particularly because my mother was extremely sick before and during conception, and becoming pregnant with me is what cured her. The doctors told her I'd be born weak and have serious medical problems all my life, but I was born chubby and healthy and until the onset of CFS at age 28 I've always been very naturally healthy, rarely scarred, and healed from injury faster than almost anybody I've known.
I previously considered this to be mainly just a fact, but if it's something a really smart dude who doesn't know me all that well can extrapolate at random I feel that it could be of interest to see how it plays out in a group.
I have divided the questions by birth sex as well, because it's an easy data point and we know there's a large discrepancy between who gets this.
I also wonder if there's a correlation at all between sickness during pregnancy and type of onset.
Regarding the main question, answer yes if your mother became sick during pregnancy or was sick during conception and became well because of the pregnancy.
I think that if there's a large correlation here, and if we feel it warrants further consideration, we can then try a poll for further details among a smaller subset.
If this has already been done before, please let me know? I couldn't find anything.
Also, whatever the case, please feel free to tell your story! I'm especially interested in the age of onset and what kind of person you were before ME. Reading through stories could reveal other clues.
It was a fairly surprising question, particularly because my mother was extremely sick before and during conception, and becoming pregnant with me is what cured her. The doctors told her I'd be born weak and have serious medical problems all my life, but I was born chubby and healthy and until the onset of CFS at age 28 I've always been very naturally healthy, rarely scarred, and healed from injury faster than almost anybody I've known.
I previously considered this to be mainly just a fact, but if it's something a really smart dude who doesn't know me all that well can extrapolate at random I feel that it could be of interest to see how it plays out in a group.
I have divided the questions by birth sex as well, because it's an easy data point and we know there's a large discrepancy between who gets this.
I also wonder if there's a correlation at all between sickness during pregnancy and type of onset.
Regarding the main question, answer yes if your mother became sick during pregnancy or was sick during conception and became well because of the pregnancy.
I think that if there's a large correlation here, and if we feel it warrants further consideration, we can then try a poll for further details among a smaller subset.
If this has already been done before, please let me know? I couldn't find anything.
Also, whatever the case, please feel free to tell your story! I'm especially interested in the age of onset and what kind of person you were before ME. Reading through stories could reveal other clues.