• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

A new collaboration? Good news.


Senior Member
Campaigning of patients directly to researchers on twitter works, unfortunately most patients on this platform do not try to engage on that level and rather shout stuff in their respective bubbles.
Yes, twitter is the hit and run mode of online communication.