A message to you from Ron and Janet

[Ben H]

Hi guys,

OMF-funded ME/CFS Collaborative Research Center
at Stanford

An End of Year Message from Ronald W. Davis, PhD, and Janet L. Dafoe, PhD

We have accomplished so much with the amazing donations generously given to OMF and we are grateful. We have collected huge amounts of data in our Severely Ill Patients Study, which has yielded lots of information and hypotheses. We have developed 4 promising potential diagnostic tests, including the nanoneedle, and we are working on several more. We have published a paper on Red Blood Cell Deformability. We have developed the Metabolic Trap hypothesis, made much progress on testing it, and published it in a theoretical paper. We have begun collecting data on both toxic heavy metals and essential metals, which is beginning to suggest alterations that may contribute to symptoms. We have collected myriads of multi-omic data on families. These studies have already shown us a large number of molecular alterations in patients, but science is slow, and frustratingly underfunded. The rate-limiting step is always funding. We could do so much more and get answers faster with more funding. We have written many grants to NIH, but so far only one has been funded. Don't believe anyone who says NIH isn't funding ME/CFS because they don't get good grants!

In addition to funding our center at Stanford, OMF has also funded two new centers, one at Harvard and one at Uppsala University in Sweden. These centers are making progress on analyzing muscle cells and the molecular biology of spinal fluid in ME/CFS patients. (Read More….)


Donate to support OMF-funded research.



www.omf.ngo



B

 

[SlamDancin]

I had a lot of fun working on metabolic trap before it had a name which I wouldn’t have been able to do without Ron and I have gotten significantly healthier in the last year going the JenB/Jeff general route of treatment. I don’t know that I would have had enough hope to get through the many years of being in bed not getting better were it not for the purpose and the inspiration and the belief in myself that has come from the combined spirit of Ron Janet Whitney Family and OMF and all the work they’ve sponsored. Seriously thank you guys and the work hasn’t stopped either hopefully you’ll hear from me more when I’m more fully recovered. Merry Xmas and happy New Years.

Lookin’ great!

 

[ljimbo423]

This is a huge undertaking but we are confident that we can discover ways to provide treatments and eventually a cure for the millions of people suffering from this disease. We are personally 100% invested in bringing our son and other suffering patients back to a life they can enjoy. We will never give up.

 

[GlassHouse]

For those of us near the Bay how can we contribute blood and spinal fluid?

 

[percyval577]

We have begun collecting data on both toxic heavy metals and essential metals, which is beginning to suggest alterations that may contribute to symptoms.

Very interesting (and matching up with my experiences with four essential ones).

 

[SlamDancin]

@Ben H Let me guess if I can, Cu is one of the essential metals you’re finding relevant?

 

[SlamDancin]

@Ben H hey man I’d consider myself “recovering “ but probably still could trigger the nano needle. I’ll be in the Bay Area soon and also have possible CCI/AAI and polyneuropathies. I’m willing to do anything for study you need.

 

[wigglethemouse]

@Ben H hey man I’d consider myself “recovering “ but probably still could trigger the nano needle. I’ll be in the Bay Area soon and also have possible CCI/AAI and polyneuropathies. I’m willing to do anything for study you need.

@SlamDancin You can email Anna Okumu the patient coordinator : aokumu at stanford.edu

There is a phone number on this thread
https://forums.phoenixrising.me/thr...kaufmans-office-mt-view-ca.62062/post-1009520