Hope123
Senior Member
- Messages
- 1,266
To the original poster, haven't gone through all the posts but a few thoughts:
First, realize that there are others on this forum with scientific/ medical/ statistical backgrounds. Sure, there are things I see on the forum that are incorrect/ questionable but frankly, you have to decide where you want to put your energy.
Secondly, as someone with a clinical background, I've found that there are lots of questions and situations within and without CFS that haven't been study, haven't been studied well, or are not able to be studied for logistical/ monetary/ or ethical reasons. In those cases, clinicians and patients often have to make decisions with imperfect evidence. In addition, there's something to be said for figuring out when people are receptive to information or not. You might be right but if the people you're giving the information to don't feel ready to accept it or change what they're doing, you just end up in an argument with them.In my life, if you were not my patient and you did not ask me for my honest opinion, I won't speak up about your treatment.
Third, if you're interested, there is a professional group of clinicians and scientists dedicated to solving ME/CFS. You can find out more and join by checking out the website; there is a scientific meeting that professionals, patients, and family members can attend next March in San Francisco.
http://www.iacfsme.org/
First, realize that there are others on this forum with scientific/ medical/ statistical backgrounds. Sure, there are things I see on the forum that are incorrect/ questionable but frankly, you have to decide where you want to put your energy.
Secondly, as someone with a clinical background, I've found that there are lots of questions and situations within and without CFS that haven't been study, haven't been studied well, or are not able to be studied for logistical/ monetary/ or ethical reasons. In those cases, clinicians and patients often have to make decisions with imperfect evidence. In addition, there's something to be said for figuring out when people are receptive to information or not. You might be right but if the people you're giving the information to don't feel ready to accept it or change what they're doing, you just end up in an argument with them.In my life, if you were not my patient and you did not ask me for my honest opinion, I won't speak up about your treatment.
Third, if you're interested, there is a professional group of clinicians and scientists dedicated to solving ME/CFS. You can find out more and join by checking out the website; there is a scientific meeting that professionals, patients, and family members can attend next March in San Francisco.
http://www.iacfsme.org/