A geneticist’s biggest challenge: Curing his own son

raghav

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With Davis’s help, the Open Medicine Foundation, which leads the largest non-profit effort to diagnose, treat and prevent ME/CFS and related chronic, complex diseases, raised more than $18m in 2019 and was on track to raise another $20m in 2020

Is this number correct ?
 
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@raghav,

They haven't posted their 2020 990 yet, but for 2019 it's no where near 18 million. The Open Medicine Foundation's 2019 990 shows in the gross receipts (all money received from their accounting year) section they brought in $4,286,613. The highest donation year was in 2018 with $8,908,795. The only way I can get near the 18 million number is if I add the gross receipts from 2016-19 together and that gives you $17,480,258.
 
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raghav

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@Possibly James May I think it is an error on the part of the journalist. Maybe that is what Janet wanted corrected in the article. From my calculation using OMF website posted info upto 2019 it was 20 million. In 2020 around october it mentioned 28 million. After that they received the 1 million for covid and me/cfs connection study and then they had 1.4 million from triple tuesday. So for 2020 it must be a little above 10 million from their data. But your data will be more accurate. Lets see what they post. They are updating OMF website quite frequently of late which is a good sign.
 

gbells

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Hard to have hope for me personally. 4.5 million hurts : (
Lobby congress for a $200 million research budget instead of the current paltry $15 million. It won't change until ME patients and supporters demand it. Look at the hundreds of millions of dollars being wasted on longevity research for billionaires. It's all a question of priorities. ME patients are being screwed.
 
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bensmith

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Do you have any more specifics, i can still write letters.

Just wrote a letter to my senator but im in oklahoma so thats not good.
 
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seamyb

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"Whitney’s state is comparable to an AIDS patient about a week before his death. And that has been the case for the last six years."

Heartbreaking.