9 weeks on Valcyte

[aquariusgirl]

Yeah, it was Joseph Brewer who said that & I thought he knew his way around this disease, so I was kinda surprised. Thanks for responding.

 

[Timaca]

Aquariusgirl~
According to the HHV-6 foundation those titers are not high enough to think there might be an active infection going on. See: http://www.hhv-6foundation.org/testing.htm
My antibody titers for HHV-6 have been 1:320 and 1:640. They dropped to 1:80 on valcyte and I was ecstatic. (Using Focus lab)
I also have very high antibody titers to Coxsackie B3 and B4 (measured at ARUP lab). Consider testing for those pathogens. See: http://www.enterovirusfoundation.org/chronicinfections.shtml

Best, Timaca

 

[Grape Funk]

Aquarius did you test for any other viruses beside the HHv6a?

 

[aquariusgirl]

Thanks Timaca. Helps to have something to compare to.
Been meaning to run the Arup tests forever.

Grapefunk: Yes, EBV, CMV, Mycoplasma Pneumonia.

Brewer said I had chronic EBV. But I think he is more concerned about the XMRV. I haven't tested yet, but he thinks, as do I, that its fingerprints are all over my family.. ie familial history of prostate/breast cancer.

 

[undcvr]

Tell Brewer to focus on EBV. Montoya does not consider it an active infection unless your IgG by IFA is over 1:320, just fyi.