Article: ME/CFS Orgs Petition the CDC For Change

Cort · Jan 24, 2011

This is hopefully the beginning of ME/CFS orgs banding together to effect change -something that Marly Silverman has promoted for years; given that it's no surprise she started this effort.

Phoenix Rising is not on the list of organizations that signed the letter; we had a few issues with it that we couldn't resolve but we definitely support the effort and their intentions and hope to be part of further efforts.......

Congratulations to Marly and the other other organizations for creating the first really integrated advocacy effort that I can remember. And what a great idea with the petition

Grape Funk · Jan 25, 2011

the links are down/there is no place to sign the petition

Grape Funk · Jan 25, 2011

http://www.change.org/patient_allia.../view/tell_cdc_to_change_their_mecfs_research

There is the link to sign. Just fill out the box with your information in the top right corner. Peace yall

Cort · Jan 25, 2011

Thanks Grape Funk I fixed the link.

beesknees · Jan 25, 2011

Signed it.

Revday · Jan 26, 2011

Huh?

"Phoenix Rising is not on the list of organizations that signed the letter; we had a few issues with it that we couldn't resolve..."

Who, What, Where, Why, and How please?

:sofa:

Cort · Jan 26, 2011

Coming soon! We really do support the intent of the letter and wanted a few issues clarified. Unfortunately that wasn't possible so we deferred. We fully expect and look forward to being part of future letters.

justinreilly · Jan 26, 2011

Cort said:
Congratulations to Marly and the other other organizations for creating the first really integrated advocacy effort that I can remember. And what a great idea with the petition

ditto!....

Revday · Jan 28, 2011

Cort said:
Coming soon! We really do support the intent of the letter and wanted a few issues clarified. Unfortunately that wasn't possible so we deferred. We fully expect and look forward to being part of future letters.

Thank you Cort.

Dolphin · Jan 28, 2011

Another (older) petition: against CDC "empiric" criteria

For anyone who doesn't know about it:
http://www.ipetitions.com/petition/empirical_defn_and_cfs_research/signatures