I also believe it is 100% retrovirus XRMV mutants (explains lack of single test to detect) with coinfections adding to the wide variety of symptoms. We also have "endogenus retroviruses" that can influenced by other infections.
I saw the hunter hopkins center "cfs specialists" for 2000$ including tests (they lied about the costs). They only quoted that study that says that people who cant sleep should take sleep meds, in pain? take pain meds, and you wont hate your life as much. I think its the shine study? What a joke. Some people quote it as the cure who havent read it or know anything about cfs.
Cfs speacialists can be some of the worst scam artists, so yes get a reliable refferal before you go and get price quotes BEFORE. Get tested for viruses: epstein abrr, hvv6, mycoplasma, chlamdiya pneumonia, hormones levels, coxsackie viruses etc etc.
I have tried everything including antiretrovirals, only havent tried ampligen and visitide. In 8 years of suffering, this has worked the best for me. And its not nearly as costly...
Vitamin C - 18 grams sodium ascorbate, 6 grams per meal (Im 210 lbs)
*Lysine - 6 grams per day, 2 grams per meal. Combined with vitamin C, this is a
natural protease inhibitor.
*Proline 6 grams per day, 2 grams per meal. Combined with vitamin C, this is a
natural protease inhibitor.
*Glycine - 6 grams per day, 2 grams per meal. This is a natural protease inhibitor.
*A glass of all natural/organic Green Tea once every 3 days (makes me feel great but I get some nerve pain)
*N-Acetyl Cysteine 1800mg per day. 600mg per meal. This is a critical component to protect your
liver.
*Acetyl-L-Carnitine - 1500mg
*Co-Q10 300-1500 mg per day, Take the larger dosages if you have serious muscle weakness or chronic
fatigue. It is very expensive, so take whatever amount you can afford.
*Vitamin E - 400iu natural vitamin e
*Lugols Iodine (5%)- 2 drops, twice per day, weekends off. Go off of it for a month if you get pain in the bottom of your neck.
*SAM-e (from gnc)- 400mg a day (ive tried 3 brands and sam-e from gnc only one I felt good on)
+occasional (once or twice per week) zinc, selenium, magnesium, melatonin, potassium, raw thyroid supplement, edta suppositories, taurine, b vitamins, and sulbutiamine
Avoid taking selenium and melatonin within two days of each other. Ive had horrible scary auto immune reactions.