• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. C

    During PEM, my visual perception of the world seems slightly darker....anyone else?

    A bit of an odd one maybe but…. When I’m in PEM, the world seems ever so slightly darker. I came across one interview of an ME patient in Dan Neuffer’s ANS Rewire program who said that he experienced the same thing and I also - in researching for my book about psychogenic polydipsia - came...
  2. frozenborderline

    Vision problems , most likely neurological

    Date March 20th 2022 Visual problems. Even with glasses. Double vision, nystagmus , trouble focusing totally, blurry vision. Getting headache slightly when I focus hard. I didn't really notice this when I was only scrolling on my phone and not focusing on anything for long but I think...
  3. Nord Wolf

    Vision Loss with PEM

    One of my 55 major symptoms include the loss of vision when with trenches in my rather constant state of PEM. I can see muted light, but my actual vision is gone. I explain it best like this: try imagining an artists glass pallet filled with a mess of smeared color (zero definition, depth...
  4. M

    Mild, bizarre symptoms

    Hello All, Sure we're all familiar with the vagueness of the symptoms that occur with chronic fatigue. I have been to see POTS/cardio specialist for several years, then haematology for high iron, rheumy for atypical anca and slightly low C4, gastroenterologist for a colon/gastroscopy, and now...