united kingdom

  1. SpinachHands

    Is hospitalisation an option? (UK)

    Haven't been here in a while so some background info- I care for my partner with long COVID/ME who has been fully bedbound since December. Their condition has only worsened with an onset of severe autonomic dysfunction in February. They are only able to have liquid food, cannot sit up, can't...
  2. R

    Looking for ME-friendly cardiologist in London, UK

    Hi everyone, I'm posting on behalf of my mum who has ME. Her doctor she sees for her ME is concerned that she has some abnormal signs in tests on her heart, and referred her to see a cardiologist. However the cardiologist (as is so often the case) totally fobbed her off and didn't explore any...
  3. Countrygirl

    DecodeME: Take Part in the World's Largest Genetic Study into ME

    https://www.theguardian.com/society/2020/jun/23/uk-to-launch-genetic-study-chronic-fatigue-syndrome-cfs?fbclid=IwAR2H9ZG1-BBZzu2KCOefscZKuCca9AfIGslXjWLpfgpSi49S9VotmMcglJE
  4. 20somethingspoonie

    Looking for endocrinologist in UK

    Hello! As the title says, I'm looking for a private endocrinologist in the UK, preferably in the Manchester area. I'm specifically looking into Dr. Tara Kearney and Dr Annice Mukherjee, if anyone has any experience with them. Thanks in advance!
  5. 20somethingspoonie

    UK doctors who will prescribe meds

    Hello! I'm new to the UK and looking for a doctor who will prescribe meds. When I lived in the US, I had a psychiatrist who prescribed Modafinil, which is the only thing that has ever helped my ME/CFS. My current psychiatrist in the UK doesn't seem to believe in ME/CFS and won't prescribe...
Back