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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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specialist

  1. H

    Looking for EDS specialist in Germany

    I have a diagnosis of CCI/AAI from Dr. G. I am slightly hypermobil (4/9 of Beighton Score). Seeking to get a proper diagnosis, whether EDS is part of my issues or not. Does anyone know an EDS expert in Germany (south)?
  2. S

    Worth going out of state?

    Hi, I am new to the CFS community, as I just received my diagnosis this year. I have read through many posts on this site and noticed that a lot of you have traveled for your care. How does that work exactly? Do you travel to see them consistently, or was that just for the initial diagnosis? I...
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