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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Tella

    Bedbound: muscles loss? Exercises? Tips? Let’s discuss :)

    Hey, was just interested and wanted to see if anyone who’s bedbound/severe (0 on Dr Lerner’s scale) can answer these: How long have u been bedbound for and at what point did u start being bedbound during the course of illness? Have u ever flactuated on the severity scale? For those who’ve been...