Tella
Senior Member
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- 397
Hey, was just interested and wanted to see if anyone who’s bedbound/severe (0 on Dr Lerner’s scale) can answer these:
How long have u been bedbound for and at what point did u start being bedbound during the course of illness?
Have u ever flactuated on the severity scale?
For those who’ve been bedbound for long (at least a few months), how do u deal with muscle loss if u deal with it at all?
Is there any way u have found to do exercises (read: flex muscles for a minute perhaps?) without getting PEM or horrible pain straight away or delayed pain?
If u have been bedbound for at least a year with no activity apart from bathroom breaks, is there any hope for u to regain muscle back u think?
I’ve read that it ‘may’ be possible to regain lost muscle when u start being mobile but it’s not a slam dunk. Does it mean those who get better/recover never recover their actual muscles?!
Has anyone tried ultrasound or electrical stimulation therapy and has it helped? If u haven’t, why not?
Also some pics online of bedbound patients: not all of them look like they’ve lost lots of muscle, hows that possible?
I just want to hear true experiences but positive stories are so great!
lemme know, good n bad, articles etc
How long have u been bedbound for and at what point did u start being bedbound during the course of illness?
Have u ever flactuated on the severity scale?
For those who’ve been bedbound for long (at least a few months), how do u deal with muscle loss if u deal with it at all?
Is there any way u have found to do exercises (read: flex muscles for a minute perhaps?) without getting PEM or horrible pain straight away or delayed pain?
If u have been bedbound for at least a year with no activity apart from bathroom breaks, is there any hope for u to regain muscle back u think?
I’ve read that it ‘may’ be possible to regain lost muscle when u start being mobile but it’s not a slam dunk. Does it mean those who get better/recover never recover their actual muscles?!
Has anyone tried ultrasound or electrical stimulation therapy and has it helped? If u haven’t, why not?
Also some pics online of bedbound patients: not all of them look like they’ve lost lots of muscle, hows that possible?
I just want to hear true experiences but positive stories are so great!
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