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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. aurel

    lasting worsening after immunoglobulines (gammanorm)

    I started taking subcutaneous immunoglobulines (gammanorm) in spring of 2020 (prescribed by KDM). Before the treatment, I was able to work 30h per week and go for 30 minute walks daily. I did the treatment for 6 weeks (one injection per week) and felt a continuous deterioration. At first, I...
  2. crypt0cu1t

    Getting Ulcers Again From SCIG (sub-cutaneous immunoglobulin)

    So, as some of you know, I started SCIG again for my Autoimmune Encephalitis. In 2018 I did high dose IVIG and sooner after developed severe esophageal ulcers, mouth ulcers and swollen lips alongside high fevers. I'm getting ulcers again (I can feel the intense pain just as I did before) but...
  3. Sing

    BriovaRX Infusion Services?

    Has anyone here in the U.S. had experiences with BriovaRx Infusion Services? I just started with them for SCIG (sub-cutaneous IGG infusions). My questions about them have to do with the quality of this organization. If you don’t want to read this long post, even a simple answer would be helpful...