• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. MartinK

    How I improved from very severe to moderate in 14 days

    I haven't been here for a long time because I was going through the most challenging time of my life. I began to suffer from extreme insomnia, which gradually worsened all my symptoms - pain, burning in the body, exhaustion. I was falling into a state where I thought I was going to die. And I...
  2. Celandine

    Guardian article on the Remission Biome Project--gut and antibiotic exploration for ME/CFS

    https://www.theguardian.com/science/2023/jul/09/microbiome-chronic-fatigue-me-long-covid-research I've been following this on Twitter for a while. Nice to see it get some mainstream attention. Self-experimentation at its finest!
  3. Hip

    Long COVID ME/CFS patient goes into remission after 3 weeks on the antiviral sofosbuvir

    A long COVID patient on Reddit (Warm_Camera_7052) with ME/CFS symptoms reports that after he took the antiviral sofosbuvir for just 3 weeks, this put his illness into full remission. He has only been in remission for one month though, so relapse remains a possibility. His brother with LC...
  4. N

    Full remission after 7 years of ME/CFS - What worked for me

    Hi all, just wanting to share my success story and how I got complete remission through an intense autoimmune protocol, low-dose abilify, and getting a cold. Full disclosure the doctor who's autoimmune protocol I followed does absolutely make money from books and very expensive consults, but I...
  5. Elike

    Berberine helped me

    I wanted to share with you my experience with Berberine (and others). I am in remisson I guess one can say, the last eight months I was in a severe state and now after 4 weeks taking Berberine I am at my pre-severe state. It's not perfect far from it, but I don't feel constantly in PEM mode...
  6. Hip

    Study found 31% of EBV ME/CFS patients achieved full remission on spironolactone 25 mg daily

    A 2020 study gave spironolactone 25 mg daily to sixteen Epstein-Barr virus ME/CFS patients, and found that 31% achieved full remission from their illness, and the other 69% observed improvements in their ME/CFS symptoms. Spironolactone is a diuretic drug, which is also prescribed for high blood...