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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Pyrrhus

    Poll: Have you ever experienced complete paralysis of a part of your body?

    Have you ever experienced complete paralysis of a part of your body? Multiple selections are allowed. Please feel free to explain details in a post. By "complete paralysis", I am not referring to sleep paralysis or to any extreme weakness that prevents movement. Related discussion...
  2. R.Little

    Pacing Help (also: paralysis!)

    Hi! I know that cfsselfhelp.org offers classes about Pacing, but I feel like I just need another human or a group or something to help keep me accountable to building a schedule and sticking to it. I understand the disease pretty well, I've been doing this for a while now, I just get...
  3. Jenny TipsforME

    Temporary paralysis I need your Insights

    I probably shouldn't be writing this I suspect aggressive rest required so keeping it brief for now Help: Yesterday had 11 hours not able to move. Could control head, fingers, toes Reversed again instantly except I still feel weird, tingling sensation etc Felt too ill to sleep last night...