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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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myalgic encephalomyelitis

  1. SWAlexander

    The Draft Report by the Institute for Quality and Efficiency in Healthcare Does Not Provide Any Evidence That Graded Exercise Therapy and Cognitive Be

    Abstract The German Institute for Quality and Efficiency in Healthcare (IQWiG) recently published its draft report to the government about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The IQWiG concluded that graded exercise therapy (GET) and cognitive behavioral therapy (CBT)...
  2. I

    IVIG UK

    Hi, does anyone know if there is anywhere in the UK that offers IVIG privately? I'm looking to try it out as a POTS treatment which seems to be autoimmune in my case. It seems it is only offered on the NHS for immune deficiency and, whilst I know i'm immune deficient (low white blood cells and...
    • Inez
    • Thread
    • autoantibodies autoimmune cfs hyperpots ivig myalgic encephalomyelitis postural orthostatic tachycardia syndrome (pots) pots
    • Replies: 5
    • Forum: General Treatment
  3. C

    Extremely ill after 3 months cancer treatment. Bedbound again.

    So I've had an ME diagnosis for at least 15 years. I became full blown chronically ill when I was only a teenager and I can't pinpoint anything that caused this, over the years I just got worse and worse. I ended up bedbound in my early 20's and spent most of my 20's resting, pacing, sleeping...
    • CallieAndToby
    • Thread
    • bedbound cancer cancer treatment declining immunosuppression immunosupressants insomnia interstitial cystitis myalgic encephalomyelitis seizure
    • Replies: 17
    • Forum: General ME/CFS Discussion
  4. May12th

    #RUN4ME ON Sept 14, 2019 in Ontario Canada

    Please join us on Sept 14th for Action CIND’s first annual #Run4ME. The event is a chance to raise funds for Action CIND’s Myalgic Encephalomyelitis (ME) Research Fund. Come as a participant or a spectator to cheer on our runners and walkers on a 1K/5K walk/run at Woodland Trails Scout Camp, in...
    • May12th
    • Thread
    • #myalgice #run4me action cind fundraising myalgic encephalomyelitis research
    • Replies: 0
    • Forum: Fundraising
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