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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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me/cfs treatment

  1. Manuel

    Epstein–Barr virus-acquired immunodeficiency in myalgic encephalomyelitisβ€”Is it present in long COVID?

    πŸ” 𝐍𝐄𝐖 π€π‘π“πˆπ‚π‹π„ ππ”ππ‹πˆπ’π‡π„πƒ! π”π§π«πšπ―πžπ₯𝐒𝐧𝐠 𝐭𝐑𝐞 π‚π¨π§π§πžπœπ­π’π¨π§π¬ 𝐁𝐞𝐭𝐰𝐞𝐞𝐧 𝐄𝐁𝐕, 𝐋𝐨𝐧𝐠 π‚πŽπ•πˆπƒ, 𝐚𝐧𝐝 𝐌𝐲𝐚π₯𝐠𝐒𝐜 π„π§πœπžπ©π‘πšπ₯𝐨𝐦𝐲𝐞π₯𝐒𝐭𝐒𝐬 🧬 After months of meticulous review and analysis, I am proud to present a study that explores the deep connections between Epstein-Barr virus (EBV), Long COVID and Myalgic...
    • Manuel
    • Thread
    • #ebv #mecfs herpesviruses immunodeficiency longcovid me/cfs treatment sars-cov-2 treatment treatment long-covid virus
    • Replies: 27
    • Forum: Latest ME/CFS Research
  2. 20somethingspoonie

    What is your experience with Adrafinil?

    Hello! I saw Adrafinil mentioned on another thread because it metabolizes into Modafinil, but is said to be over the counter/easier to obtain than Modafinil. I used to take Modafinil, so I'm curious to know if anyone has experience with Adrafinil and, if so, if it helped.
  3. leokitten

    Selective translocator protein (TSPO) agonists

    Given that there is anecdotal evidence of lorazepam (Ativan) causing rapid temporary improvement of ME symptoms, even in very severe cases, I’ve wondered why ME researchers aren’t looking more closely at researching selective translocator protein (TSPO) agonists. TSPO is also known as the...
  4. M

    Melbourne members: Treatments - Neuro rehab group, Zebras, CFS in-hospital programs, any advice?

    Hello All. I'm looking into all my options as best I can after a fruitless search diagnostically. Still considering connective tissue disorder and looking at getting a second opinion from a rheumy, but have to start somewhere with treatment to try to get my life back on track (and even if the...
  5. Wolfcub

    Started Ubiqinol (Q10) Interested in how it worked or not for others

    I started taking Ubiquinol (Co-enzyme Q10) today, and am interested in if others have tried it and any results? The recommended dosage is 1-2 tablets per day. I started with one which I took midday after eating. I'm generally not doing too badly, but do get periods when some of the "old...
  6. BeADocToGoTo1

    Exocrine Pancreatic Insufficiency Treatment for CFS

    This is what resolved 99% of my CFS symptoms, and I am hoping that fellow sufferers (and doctors) will at least consider it as a path to check out. It is sadly not on the radar of most doctors and sufferers, but conceptually (in hindsight) quite simple. With exocrine pancreatic insufficiency...