• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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me cfs

  1. FoxgloveFever

    HHV-6/EBV testing UK? / Remitting symptoms on Molnupiravir?

    Can anyone recommend a private UK clinic that offers testing and treatment for underlying EBV, HHV-6 etc infections? Has anyone else experienced a lessening of ME symptoms after taking Molnupiravir or any other Covid treatment? I've had ME since 2006, varying from mild to severe across the...
  2. SWAlexander

    Doctors have been taught to gaslight patients with #ME for decades.

    Doctors have been taught to gaslight patients with #ME for decades. This video from the 90s teaches GPs that patients are frustrating to work with because they are mistaken about the cause of the illness and can often engage in arguments. Myalgic encephalomyelitis: Lives devastated - and...
  3. SWAlexander

    A Proposed New Model to Explain the Role of Low Dose Non-DNA Targeted Radiation Exposure in Chronic Fatigue and Immune Dysfunction Syndrome

    In these two links, there's a discussion about radiation. related to Uranium. I have read about the Iraq war issues. My question is, have any other scientists addressed or validated the connection to Uranium, or have any ME/CFS organizations supported the notion of chromosomal damage or...
  4. B

    Cofactors & Their Necessity: A Dicussion

    I detailed in my first thread how I came down with severe ME/CFS symptoms starting in November 2022 which for the next year or so would continuously evolve in intensity to the point of me being relieved of most of my major bodily functions by summer 2023. I however found a lifeline solution in...
  5. C

    Long COVID Now Looks like a Neurological Disease, Helping Doctors to Focus Treatments - Scientific american

    In this article Nath says that in people that already had me cfs for a long time there is damage and its hard to reverse that. The paywall appeared suddenly so i cant read it again. Maybe someone can put some quotes in here. What does Nath mean by this...
  6. SWAlexander

    Studies find that microbiome changes may be a signature for ME/CFS

    Researchers have found differences in the gut microbiomes of people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) compared to healthy controls. Findings from two studies, published in Cell Host & Microbe and funded by the National Institutes of Health add to growing evidence...