• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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long hauler

  1. frozenborderline

    My plan for surviving covid, plus vaccine dillemmas

    I need to figure out how to answer the question of if the existing vaccines side effects are worse than long covid sequelae from omicron... and whether the vaccine even protects against long covid in breakthrough cases I also want to see if there are any treatments for long or acute covid that...
  2. nerd

    Some news attention on the Post-COVID link

    An op-ed by Heidi Adams Rueda has been picked up by San Antonio news. UTSA Today: The link between chronic fatigue and COVID's long haul San Antonio Express-News: Commentary: The chronic fatigue-long COVID link Unfortunately, there's the typical stress, emotional/childhood trauma, mental...
  3. nerd

    Long-COVID and CFS/ME are not MCAS

    The inducement for this post is the growing publicity of the theory that Long-COVID is just a simple disease in disguise, such as MCAS, and that there is a quick solution around the corner. For MCAS, a low histamine diet would be a simple fix to all the problems. This is the subtext of the...
    • nerd
    • Thread
    • epigenetics histone histone deacetylase long covid long hauler mast cell activation mcas
    • Replies: 12
    • Forum: Mast Cell Activation (MCAS)
  4. Pyrrhus

    Long Covid: Summary of discussions

    Long Covid: A summary of discussions on Phoenix Rising So remember back in January when we were all wondering if the novel coronavirus might result in an ME/CFS-like condition? Well, I thought I would start a thread to collect together all the discussions that might be relevant to "Long...
    • Pyrrhus
    • Thread
    • corona coronavirus covid covid 19 covid-19 covid19 https://forums.phoenixrising.me/attachments/covid-jpg.43885/ long covid long hauler sars-cov-2
    • Replies: 179
    • Forum: Long COVID and Coronavirus
  5. Pyrrhus

    CNN: Redefining Covid-19: Months after infection, patients report breathing difficulty, excessive fatigue

    https://amp.cnn.com/cnn/2020/09/13/health/long-haul-covid-fatigue-breathing-wellness/index.html A good piece written by Ryan Prior, an ME patient who works for CNN: Excerpt:
  6. Pyrrhus

    STAT: Seeking the causes of post-Covid symptoms, researchers dust off data on college students with mononucleosis

    For those of you unfamiliar with STAT, it's a website geared towards the medical community. They just published a piece by David Tuller, the academic who wrote the PACE expose: https://www.statnews.com/2020/09/11/persistent-symptoms-after-covid19-hard-to-study/ Excerpt: