ivig

I don’t have any autoimmune disease. Only have SFN symptoms during crashes, can’t get tested. No immune deficiency either. I’m very severe. Is it worth paying thousands of dollars for? What’s the risk to reward ratio here? How much do people who respond well to IVIG improve and how many of those...

Hi, does anyone know if there is anywhere in the UK that offers IVIG privately? I'm looking to try it out as a POTS treatment which seems to be autoimmune in my case. It seems it is only offered on the NHS for immune deficiency and, whilst I know i'm immune deficient (low white blood cells and...

After finally finding a doctor willing to run extensive immune labs, it turned out I had low IGG levels. I was prescribed IVIG as the first substantive treatment for my fatigue. After enduring the initial side-effects, IVIG had a systemic benefit. It gave me more energy, supposedly as an...

Hi all, I’ve found a doctor who is willing to try immune treatments for my POTs (based on antibodies), along with other general signs and symptoms suggestive of some sort of strange immune dysfunction/autoimmunity, coupled with a strong family history of autoimmunity on my mothers side. I also...

Back to the Future? Immunoglobulin Therapy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://www.mdpi.com/2227-9032/9/11/1546?fbclid=IwAR0yp17ol088Njbi7T2ppu4XS4KsCTdsHxCPpaBD_Hg7cWlOeMIZCN-A54o

I found an amazing immunologist and mast cell specialist. I thought "since my current me/cfs specialist is too scattered to help me well, this doctor should suffice, and maybe she can lead a bit more in treating my case rather than me having to do a lot of the steering". Well, our first visit...

I started taking subcutaneous immunoglobulines (gammanorm) in spring of 2020 (prescribed by KDM). Before the treatment, I was able to work 30h per week and go for 30 minute walks daily. I did the treatment for 6 weeks (one injection per week) and felt a continuous deterioration. At first, I...

So, as some of you know, I started SCIG again for my Autoimmune Encephalitis. In 2018 I did high dose IVIG and sooner after developed severe esophageal ulcers, mouth ulcers and swollen lips alongside high fevers. I'm getting ulcers again (I can feel the intense pain just as I did before) but...

Total plasma exchange (plasmapheresis). Just discovered this. It seems to be more «affordable» also. Is there a Way to try this in a clinic somewhere or some other way? https://www.terumobct.com/Pages/Therapeutic Apheresis/neurology/Neurology-Economics.aspx A COURSE OF 5 STANDARD INFUSIONS...

Found this a while ago regarding voltage gated potassium channels ANAs. Have you guys tested for this? Here's a detailed case report from Norway on a woman with Sjogren's, dysautonomia and involuntary muscle twitches who was diagnosed with malingering/somatization for years, when she actually...

I have blood pooling and the last week I have been experiencing dizziness for the first time. Though I should note that Ive been on Mestinon for 3 days. Ive seen people reverse their pots with: Abx IVIG & Rituximab I read somewhere that doxycycline could help strengthen ligaments, could this...

I have some questions about IVIG therapy. My understanding is that there is an immunodeficiency where people can't make antibodies. So IVIG is infused into the blood, sticks to loose invaders and then people have an immune response. What does it feel like as this happens? What are the...