• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. I

    Loss of IGG antibodies

    Hey, im new here and just wondering if anyone else has had this same problem with losing igg antibodies to certain viruses or other infections. So in my case i have lost the VCA IGG antibodies to EBV, they have basically disappeared when for over a year this was positive and now I'm only testing...
  2. X

    encouraging interview with immunologist Akiko Iwasaki

    This made my month. https://www.theguardian.com/society/2023/may/27/immunologist-akiko-iwasaki-we-are-not-done-with-covid-not-even-close For those of you too tired to read the whole thing: "I always have in the back of my mind – how can these insights from long Covid help people with ME/CFS...
  3. frozenborderline

    Evusheld, long lasting aspects, and possible side effects

    At this point I don't think evusheld or novavax are terrible risks compared to other immunization treatments against covid, or compared to effects of covid itself. However I do worry about one thing. i should like to ask an immunologist or a knowledgeable patient about this: if evusheld, the...
  4. frozenborderline

    How do i get my doctor to pay attention to my case and be less scattered and more responsible ?

    I found an amazing immunologist and mast cell specialist. I thought "since my current me/cfs specialist is too scattered to help me well, this doctor should suffice, and maybe she can lead a bit more in treating my case rather than me having to do a lot of the steering". Well, our first visit...
  5. Murph

    Immunoadsorption to remove ß2 adrenergic receptor antibodies in CFS/ME.

    PLoS One. 2018 Mar 15;13(3):e0193672. doi: 10.1371/journal.pone.0193672. eCollection 2018. Immunoadsorption to remove ß2 adrenergic receptor antibodies in Chronic Fatigue Syndrome CFS/ME. Scheibenbogen C1,2, Loebel M1, Freitag H1, Krueger A3, Bauer S1, Antelmann M1, Doehner W4, Scherbakov N4...