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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. ChookityPop

    Do you have muscle weakness? I think I have found a potential ME/CFS subset

    I have now tested positive for CN-1a which is mainly seen in Inclusion body myositis (IBM) patients over the age of 50 but also in other autoimmune diseases like LUPUS, Sjogrens and more. Due to the age of IBM onset this antibody is likely to be tested less frequently in younger patients. I...