• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. C

    Anthony Komaroff research presentation (video) for MassME 2022 annual meeting

  2. C

    Hypothalamic-Pituitary autoimmunity and related impairment of hormone secretions in chronic fatigue syndrome

    https://pubmed.ncbi.nlm.nih.gov/34254637/ Hypothalamic-Pituitary autoimmunity and related impairment of hormone secretions in chronic fatigue syndrome Annamaria De Bellis, 1, 2, Giuseppe Bellastella, 2, 3, Vlenia Pernice, 2, Paolo Cirillo, 2, Miriam Longo, 2, 3...
  3. thingsvarious

    I replace ALL my hormones. This brought me back to life. But is it sustainable for decades?

    In my opinion CFS is often (not always obviously) multiple hormone deficiency (esp. adrenals, perihperal thyroid sensitivity). I am a medical student in my last year. I replace ALL of my hormones. my energy levels went from the 5th percentile to the 95th percentile. In early twenties my life...
  4. A

    Is your Hypothalamus up the creek?

    Here's an idea to ponder....... ME/CFS is caused by dysfunction of the Hypothalamus. Nothing else.
  5. Pyrrhus

    Second study might confirm neuroinflammation in ME subcortical brain

    Many of you will remember the landmark Japanese study from 2014 that used PET tracers to detect and image neuroinflammation in the brains of ME patients. Previously, no one had the technology to detect and image neuroinflammation in ME, as standard MRI's are totally unable to detect or image...
  6. Sarah94

    Klimas' models of ME/CFS

  7. Jesse2233

    Poll: Do you have low vasopressin (ADH)? (Desmopressin / Blood volume / Symptom Reduction)

    Who has had their ADH (anti-diuretic hormone) levels checked and found them to be low? This has been discussed before but I’ve not seen a poll on it. A quick refresher... Antibodies to Arginine Vasopressin / ADH (AVPcAb) have been reported in post viral diabetes insipidus Low ADH has been...