• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. SWAlexander

    World’s First Tissue Bank Could Solve Mystery of Long COVID Misery

    UC San Francisco is set to launch the world’s first tissue bank with samples donated by patients with long COVID. The move follows research indicating that the virus can continue to linger throughout the body and may hold the key to understanding the cause of the debilitating disorder, leading...
  2. SeanQHX1

    Low Vitamin D and Ferritin + Heart Issues

    Hi everyone again! I just recently had both my vitamin D and ferritin checked recently and found that they are worryingly low. This is despite taking the right amount of iron in suppliments and around 4000iu of vitamin D in total with suppliments. My ferritin and iron levels have actually been...
  3. SeanQHX1

    Suspected Heart Murmur and Further Cognitve Tests

    Hi everyone again, I just thought I'd report back with another update on my health situation. My GP gave my heartbeat a listen during an appointment and reckons that I have some kind of heart murmur, so I've now been refered to a cardiologist. My heart has been doing all kinds of crazy abnormal...
  4. SWAlexander

    Multi-organ assessment in mainly non-hospitalized individuals after SARS-CoV-2 infection: The Hamburg City Health Study COVID programme

    Conclusion Subjects who apparently recovered from mild to moderate SARS-CoV-2 infection show signs of subclinical multi-organ affection related to pulmonary, cardiac, thrombotic, and renal function without signs of structural brain damage, neurocognitive, or quality-of-life impairment...
  5. SeanQHX1

    Sudden Supraventricular Tachycardia Attacks

    Hi everyone! Since about 1 year and a half into my illness, I've been getting these sudden attacks of what looks like supraventricular tachycardia. I can't say for sure as I haven't seen a cardiologist but contrary to what the doctors claim, they definitelly arn't panic attacks. These 'attacks'...
  6. kisekishiawase

    Tachycardia palpitation attack after sleep?

    I want to collect information about this condition since more than 15 years ago when it started. Its weird when i just woken up after sleeping(still on bed) i get this attack (tachy, palp) for some minutes. sometimes short sometimes long. And its not because of a dream. Im in relax state...