• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. gbells

    NIH isn't adequately funding CFS viral research because they believe the cause is unknown and this needs to change

    The CFS community has a big problem. National Institutes of Health is the major funding body for medical research in the United States. They only fund $15 million per year (frozen) for research on HHV-6 and $9 million per year for research on CFS. The problem is that researcher Bhupesh Prusty...
  2. Hip

    Is there a legal basis by which ME/CFS researchers can claim the same funding that long COVID scientists get (Congress awarded LC $1.15 billion)?

    The US Congress awarded $1.15 billion in funding over four years to the NIH for research into long COVID (ref: here). So that's about $250 million per year of long COVID research funding. Whereas at present, the NIH only gives $17 million a year for research funding in ME/CFS. $17m is a very...
  3. frozenborderline

    Updates on Long covid NIH funding and concerns from advocates

    The NIH seems to drag their feet even when congress literally hands them a huge pile of money. It really makes me wonder if it would even matter if our disease got huge amounts of funds , as even if congress allocated it, the NIH has to care enough enough spend it well... this is really...
  4. Pyrrhus

    Search for NIH Research Funding Awards by yourself

    Search for NIH Research Funding Awards by yourself If you're interested in investigating US National Institutes of Health (NIH) funding for ME research, you can find some interesting bits of information available on the NIH's "RePORTER" search website. For example, here are the results of a...
  5. nerd

    Editorial: Turning a Corner in ME/CFS Research

    Authors: Derek F. H. Pheby, Kenneth J. Friedman, Modra Murovska, Pawel Zalewski Published: 25 September 2021 doi: 10.3390/medicina57101012 Abstract
  6. frozenborderline

    Website about koroshetz, need help

    Hi all I'm working on a website about Walter koroshetz, Sort of continued off the #notenough4ME campaign from a couple years back that focused on koroshetz failure to do the right thing for ME/CFS funding at the NIH I need help with web design and even writing copy I already have the domain...
  7. C

    European Parliament: 04/30 vote for more funding for biomedical research on ME -- copy/paste mail for your MEPs

    The Committee on Petitions at the European Parliament will vote tomorrow 04/30 on a draft motion for a resolution for additional funding for biomedical research on ME. This motion is the result of Evelien van den Brink's petition. To make sure it is adopted tomorrow, please contact the MEPs of...