epidemiology

Updated ME/CFS prevalence estimates reflecting post-COVID increases and associated economic costs and funding implications (Mirin et al., 2022) https://doi.org/10.1080/21641846.2022.2062169 From the amazing Art Mirin, Mary Dimmock, and Lenny Jason: (spacing and emphasis added)

Predictors for Developing Severe ME/CFS following Infectious Mononucleosis (Jason et al., 2022) https://www.rehabiljournal.com/articles/predictors-for-developing-severe-myalgic-encephalomyelitischronic-fatigue-syndrome-following-infectious-mononucleosis.html A study from Lenny Jason that...

Nationwide epidemiological characteristics of chronic fatigue syndrome in South Korea (Lim et al., 2021) https://doi.org/10.1186/s12967-021-03170-0 It would appear that ME/cfs has been under-diagnosed in South Korea, which is not surprising given the cultural stigma. The good news is that the...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8441924/

Hey folks, I did a (not representative) Twitter survey. I wanted to get an overview on how many cases of ME had an (symptomatic) infectious onset. These are the results, I thought I share them with you (yes I know that the results have their limitations) 365/500 had a known infectious onset...

Not new, but an important epidemiological paper: Onset Patterns and Course of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Chu et al., 2019) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6370741/ Lily Chu, Ian J. Valencia, Donn W. Garvert, and Jose G. Montoya Excerpt:

In case you aren't aware of the concept of the Original Antigenic Sin, it's based on evidence how the immune system shapes based on the first childhood infections and that this dominates our lifelong immunity. So there isn't really a scientific consensus yet if this is something positive or...

MODERATOR'S NOTE: THE FIRST 33 POSTS IN THIS THREAD HAVE BEEN COPIED OR MOVED FROM THE THREAD Any recent MECFS outbreaks? If you look at the list of historical outbreaks of ME/CFS-like illnesses, you find in some cases the outbreak was very localized (to a building, institution or village)...

Hi everyone, This feels surreal to type. And I have actually been in denial for a while. But I can no longer deny that my wife now also has CFS. Her illness mirrors mine to a T. We have seen every doc in every specialty, virtually all the tests come back normal, as they did for me. We share so...

A new large meta-analysis has shown that for the vast majority of diseases, genes only play a very minor role in determining whether you get the disease or not. For the majority diseases, this study found the genetic contribution to disease development is only 5% to 10% at most. Professor David...

According to ME-Pedia the last outbreak was in 1996. Is this really true? https://me-pedia.org/wiki/List_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome_outbreaks That is well over two decades ago now. Almost a quarter century. In the 1950s there were dozens of recorded outbreaks...

I came across a pattern where a certain group of people with ME had a 100% chance of something. Statistically, they should have had a 5% chance. My sample was small and I presume with a larger sample, it will go below 100%. Yet, even if it proved to be a 10% (double the realistic odds ratio)...

Is this just my impression or it really is that ME has bigger gene/hereditary component than "other" autoimmune diseases? In my family we all have Hashimoto (mom,sister,myself and i'm quite certain my grandmom had too), as for ME, i have most pronounced, but based on all my moms descriptions of...

Incidence of myalgic encephalomyelitis/chronic fatigue syndrome in a large prospective cohort of U.S. nurses http://www.tandfonline.com/doi/full/10.1080/21641846.2017.1323576 Author: Natalia Palacios (Harvard Public Health), Kathryn Fitzgerald (John Hopkins), Anthony Komaroff (Harvard School...

It doesn't look as though this older study has been posted here before. I was interested because #MEAction's survey results indicate that 28% of respondents also had family members with ME or CFS. However, we did not stipulate that they be blood relatives. This study appears to support that...

http://www.statcan.gc.ca/daily-quotidien/150617/t002b-eng.htm Table 2 Canadians reporting a diagnosis of fibromyalgia, chronic fatigue syndrome, or multiple chemical sensitivities, by sex, household population aged 12 and older http://www.statcan.gc.ca/daily-quotidien/150617/dq150617b-eng.htm

Dr John Chia has noted that corticosteroids when given during an acute viral infection seems to be a "recipe" that can often precipitate ME/CFS. That is to say, he discovered a causal equation: acute infection + corticosteroids = ME/CFS In a presentation by at the Invest in ME Conference...

Don't think this has been posted yet. From Marshall et al in Australia. http://www.dovepress.com/the-prevalence-of-chronic-fatigue-syndrome-myalgic-encephalomyelitis-a-peer-reviewed-article-CLEP 26 March 2013. Samantha Johnston,1 Ekua W Brenu,1 Donald Staines,1,2 Sonya Marshall-Gradisnik1...

Has anyone wound up with CFS after/from an incident of major physical trauma? By physical trauma I mean a major car accident, a serious burn something like that. I'm not talking about emotional trauma or an infection, however serious. You would have been hospitalized for this kind of physical...

I didn't know about this study until now, but this is a paper from the Statistics Canada Health reports publication: http://statcan.gc.ca/pub/82-003-x/2006001/article/sympt/82-003-x2006002-eng.pdf This is part of the results of the 2003 Canadian Community Health survey, which had 135,573...

Does ME/CFS crop up in families? Take the poll and lets find out! If at least one member of the following groups has something that appears to be ME/CFS (mysterious fatiguing and debilitating disorder doctors cannot figure out) please check them.

coxy, one of our new members, posted: hi, i'm new. i'm a M.E mum of 4 children, 2 of them also have M.E i'm afraid.