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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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cirs

  1. JasonPerth

    MECFS & CIRS

    Does anyone with experience in the condition CIRS able to assist ? I personally hate illnesses that have the “95% diagnosis and success treatment rate” that is always told to you as a disclaimer. I believe- If you have MECFS, and do CIRS diagnostic tests, you will likely be positive. This is...
  2. E

    Should I test/treat for mold, when exposure was decade+ ago?

    I'm pretty sure that mold was the origin story of my ME/CFS although I've only realised it in the last year! My question is if I should still be looking to test / treat this, even though it was so long ago? I lived in a London basement flat 2009 - 2011. We had a damp storage cupboard under the...
  3. frozenborderline

    Locations rating map of the USA. How many people find this lines up w their experience?

    https://paradigmchange.me/rate-locations/ I find this map to be fairly accurate but not detailed enough, it leaves out lots of areas of the us
  4. frozenborderline

    Outdoor toxins of particular relevance to mold illness patients

    https://paradigmchange.me/wp/outdoor-toxins/ There is a lot of focus on building mold in me/cfs but often outdoor toxins are underlooked, because they are harder to study. But there is a large volume of anecdote suggesting they matter in me/cfs as much as building mold.
  5. frozenborderline

    Paul Cheney Seminar--covers lots of research and clinical experience

    https://paradigmchange.me/wp/cheney/?fbclid=IwAR2kpq8tuZjP3mIeg9aZM2j6goro3ChWzK1LE_52m3nudQFVmmgn_cUnneY