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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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bedbound

  1. SpinachHands

    Why does my bedbound partner have PEM every day, despite doing nothing?

    They are 100% bedbound, and have done no activity in two months now. It's been a month since I was able to brush their teeth, and I was last able to change their pyjamas over a month ago. Apart from that they do absolutely nothing- I feed them liquid food through a straw, they use a bedpan and...
  2. C

    Extremely ill after 3 months cancer treatment. Bedbound again.

    So I've had an ME diagnosis for at least 15 years. I became full blown chronically ill when I was only a teenager and I can't pinpoint anything that caused this, over the years I just got worse and worse. I ended up bedbound in my early 20's and spent most of my 20's resting, pacing, sleeping...
    • CallieAndToby
    • Thread
    • bedbound cancer cancer treatment declining immunosuppression immunosupressants insomnia interstitial cystitis myalgic encephalomyelitis seizure
    • Replies: 17
    • Forum: General ME/CFS Discussion
  3. Tella

    Bedbound: muscles loss? Exercises? Tips? Let’s discuss :)

    Hey, was just interested and wanted to see if anyone who’s bedbound/severe (0 on Dr Lerner’s scale) can answer these: How long have u been bedbound for and at what point did u start being bedbound during the course of illness? Have u ever flactuated on the severity scale? For those who’ve been...