• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. SpinachHands

    Why does my bedbound partner have PEM every day, despite doing nothing?

    They are 100% bedbound, and have done no activity in two months now. It's been a month since I was able to brush their teeth, and I was last able to change their pyjamas over a month ago. Apart from that they do absolutely nothing- I feed them liquid food through a straw, they use a bedpan and...
  2. C

    Extremely ill after 3 months cancer treatment. Bedbound again.

    So I've had an ME diagnosis for at least 15 years. I became full blown chronically ill when I was only a teenager and I can't pinpoint anything that caused this, over the years I just got worse and worse. I ended up bedbound in my early 20's and spent most of my 20's resting, pacing, sleeping...
  3. Tella

    Bedbound: muscles loss? Exercises? Tips? Let’s discuss :)

    Hey, was just interested and wanted to see if anyone who’s bedbound/severe (0 on Dr Lerner’s scale) can answer these: How long have u been bedbound for and at what point did u start being bedbound during the course of illness? Have u ever flactuated on the severity scale? For those who’ve been...