bedbound

TLDR at the end! My partner who I care for is fully bedbound with severe long COVID/ME and dysautonomia. Their LC/ME has actually been improving recently, especially after a month on Ketotifen, but the dysautonomia has been worsening. The past few weeks especially have included some new...

They are 100% bedbound, and have done no activity in two months now. It's been a month since I was able to brush their teeth, and I was last able to change their pyjamas over a month ago. Apart from that they do absolutely nothing- I feed them liquid food through a straw, they use a bedpan and...

So I've had an ME diagnosis for at least 15 years. I became full blown chronically ill when I was only a teenager and I can't pinpoint anything that caused this, over the years I just got worse and worse. I ended up bedbound in my early 20's and spent most of my 20's resting, pacing, sleeping...

Hey, was just interested and wanted to see if anyone who’s bedbound/severe (0 on Dr Lerner’s scale) can answer these: How long have u been bedbound for and at what point did u start being bedbound during the course of illness? Have u ever flactuated on the severity scale? For those who’ve been...