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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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autonomic nervous system

  1. K

    Dysautonomia International 2024 conference

    https://www.dysconf.org/ Some speakers and topics have been announced on Facebook, but the topics aren’t on the website yet. https://www.facebook.com/DysautonomiaInternational/ You can sign up to attend in person, attend remotely, or to get links to most of the lectures shortly after the...
  2. SpinachHands

    What kind of doctor could help with nervous system disorder?

    My partner had a reaction to LDN that has caused their nervous system to go into overdrive. They're swinging between an overactive sympathetic nervous system and overactive parasympathetic. It's crashing them more and they don't seem to be improving. They were already fully bedbound and very...
    • SpinachHands
    • Thread
    • autonomic nervous system dysautonomia specialists sympathetic nervous system
    • Replies: 3
    • Forum: ME/CFS Doctors
  3. SpinachHands

    Managing the balance between the parasympathetic and the sympathetic nervous systems going into overdrive

    This is a continuation of my previous post that I thought may warrant it's own thread. (TLDR for linked post for context: my partner with very severe ME had a bad reaction to LDN that seems to have put their sympathetic nervous system into overdrive for the past two weeks, despite stopping LDN.)...
  4. K

    Help with Autonomic Function Testing

    Last year an annoying doctor who referred me for this test but he didn't do much about to try to fix things or help me - referred me fot his test that I am attaching here. My main Symptoms are - GI Issues/Digestion (SIBO) - POTS - Very bad exercise intolerance where I feel sick and very dizzy...
  5. SWAlexander

    NIH team documents various types of neuropathy after COVID vaccination

    In a recent study posted to the medRxiv* preprint server, researchers investigated if coronavirus disease 2019 (COVID-19) vaccination could result in neuropathic symptoms. Vaccines against severe acute respiratory syndrome coronavirus-2 (SARS-CoV-2) essentially reduce morbidity and mortality...
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