Despite Our Losses, People with ME/CFS Want More
We've been cheated by ME/CFS and we all know it. That's a no-brainer, if you'll pardon the cognitive pun. And loss didn't just result from the bad things that befell us. It also encompasses the good things that just ... never came. The absence of bounty. Of wholeness. Of peace.
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XMRV/XAND Info Center Now Up on Phoenix Rising

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Cort, Oct 13, 2009.

  1. Cort

    Cort Phoenix Rising Founder

    The discovery of the XMRV retrovirus in most chronic fatigue syndrome (ME/CFS) patients appears to be a demarcating point in the history of
    this illness. The publication of the study in Science, the most prestigious scientific journal in the world, by a stellar cast of researchers from the National Cancer Institute, the Cleveland Clinic and the Whittemore Peterson Institute prompted a flood of stories across the major media outlets and scientific publications including Nature, Scientific American, the New York Times, (two articles), NPR, Fox News, LA Times, etc.

    Amid concerns that the blood supply was contaminated the NIH officials announced they'd already held a conference on the issue. The Whittemore Peterson Institute rapidly conferred a new name for what it believes are a cadre of XMRV diseases - XAND (X Associated Neuroimmune Disease).

    Questions were quickly raised concerning prevalence, transmission, testing, treatment, etc. Much is still unknown about this new finding with news coming in almost daily. Please post comments/suggestions to me using the contact box on the above left top of the page or at

    Check out the below sections for more information on this startling find. The first page - a very long - contains an overview of what I've learned thus far. Much of it, of course, is subject to change.

    Immense congratulations and thanks, of course, go to the WPI.

    Thanks to the Phoenix Rising Forums as well for being a fount of information and for discussions with Aftermath, DM and others.

  2. Thank you very much for your relentless help and support Cort, we all hugely appreciate it.
  3. _Kim_

    _Kim_ Guest

    a teeeny error

    If I remember correctly, the -A- stands for associated, not related
  4. Dreambirdie

    Dreambirdie work in progress

    N. California
    what great work you do!

    Great job, Cort! You rock!
  5. Summer

    Summer Senior Member


    Yes, associated is correct.

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