International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Version 1.0 of the NIH’s Common Data Elements for ME/CFS Was Published on 2/28/2018

Discussion in 'General ME/CFS News' started by Wally, Mar 1, 2018.

  1. Wally

    Wally Senior Member

    News from NIH: Version 1.0 of ME/CFS Common Data Elements now available

    Version 1.0 of the NINDS/CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements is now available:


    The Trans-NIH ME/CFS Working Group”

    I received this e-mail quoted above from the Trans NIH ME/CS Working Group on 2/28/2018. Click on this link to read Version 1.0 of the Common Data Elements developed for ME/CFS.

    If another thread has not already been started to review this version of the Common Data Elements, you can use this thread to comment or raise questions you may have about this topic. For reference purposes, here are prior threads where discussion about the “draft” Common Data Elements were discussed. (If I have missed any threads with comments/questions about the CDE’s, please tag me in this thread and I will edit the list identified below.)




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