International ME/CFS and FM Awareness Day Is On May 12, 2018
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Version 1.0 of the NIH’s Common Data Elements for ME/CFS Was Published on 2/28/2018

Discussion in 'General ME/CFS News' started by Wally, Mar 1, 2018.

  1. Wally

    Wally Senior Member

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    News from NIH: Version 1.0 of ME/CFS Common Data Elements now available

    Version 1.0 of the NINDS/CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements is now available: https://www.commondataelements.ninds.nih.gov/MECFS.aspx#tab=Data_Standards


    Regards,

    The Trans-NIH ME/CFS Working Group”

    I received this e-mail quoted above from the Trans NIH ME/CS Working Group on 2/28/2018. Click on this link to read Version 1.0 of the Common Data Elements developed for ME/CFS.
    https://www.commondataelements.ninds.nih.gov/MECFS.aspx#tab=Data_Standards


    If another thread has not already been started to review this version of the Common Data Elements, you can use this thread to comment or raise questions you may have about this topic. For reference purposes, here are prior threads where discussion about the “draft” Common Data Elements were discussed. (If I have missed any threads with comments/questions about the CDE’s, please tag me in this thread and I will edit the list identified below.)

    1) http://forums.phoenixrising.me/inde...ure-research-action-needed.57023/#post-947016

    and
    2) http://forums.phoenixrising.me/inde...-draft-see-what-you-can-do.57459/#post-952562
    and
    3) http://forums.phoenixrising.me/inde...ments-fatigue-me-cfs-cde-public-review.57273/

    Wally



     
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