The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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My feedback on content of Common Data Elements (Fatigue) - ME/CFS CDE Public Review

Discussion in 'General ME/CFS News' started by Tom Kindlon, Jan 20, 2018.

  1. Tom Kindlon

    Tom Kindlon Senior Member

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    I just submitted the following comments.

    Thanks to @Sasha and @Graham for giving me feedback on an earlier draft.

    I am aware of another draft submission that is being made on this instrument (I was too late to the discussion to give my comments) so decided to restrict myself to a few comments rather than giving a thorough review.

    I hope other people will submit comments on particular categories or questionnaires. All the information is here: https://commondataelements.ninds.nih.gov/MECFS.aspx#tab=Data_Standards

    I don't believe it is necessary to cite papers to make the majority of points, in this case I just was aware of data. In many other cases there may not be appropriate data. I'd also don't think you need to be attached to any one group to make a submission.

    I'm not sure if I will be making any other submissions due to my workload and health.

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