August 8th, 2018: Understanding and Remembrance Day for Severe ME
Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the 25% of those with ME/CFS who are most severely ill.
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UK members - Please take this Survey on Freedom of Information

Discussion in 'Action Alerts and Advocacy' started by MeSci, Jan 18, 2016.

  1. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    This is from the organisation 38 degrees, and is probably only available to people in the UK.
    Note - you may want to say 'don't know' to some questions where such an option is not provided. There is a box at the end where you can state this, where it asks for any other comments or similar.
     
  2. Sasha

    Sasha Fine, thank you

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    @MeSci, would you like to edit your thread title to make it clear this is a call to action, rather than the results of a survey?

    Maybe something like "Do this 38 Degrees survey to protect Freedom of Information Act"?
     
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  3. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Good point - have changed it - hope this is better.
     
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  4. Sasha

    Sasha Fine, thank you

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    I'd be inclined to mention 38 Degrees in the title, since they're well known and people will know they won't be wasting their time with a survey whose results won't be looked at. Up to you, though!
     
  5. snowathlete

    snowathlete

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    I filled it in and mentioned the PACE trial FOI nonsense.
     
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  6. Countrygirl

    Countrygirl Senior Member

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    I have filled it in and also referred to its relevance to the PACE trial.
     
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  7. Sasha

    Sasha Fine, thank you

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    Same here.
     
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