International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Tolerating Dapsone anemia?

Discussion in 'Lyme Disease and Co-Infections' started by 5vforest, Oct 6, 2018.

  1. 5vforest

    5vforest

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    Question for those of you who have taken Dapsone: have you had an issues tolerating the folic acid-induced anemia that comes with it?

    After a few weeks of Dapsone, my hemoglobin had dropped by 3 grams / dL (which Horowitz says is normal), but I started to get a whole host of anemia-like symptoms: my heart rate would spike easily, I would have shortness of breath, headaches, and I would get severe leg cramps.

    I was on all of the supportive supplements and medications that Horowitz recommends.

    I stopped the Dapsone and haven't restarted yet. (It's been a month or so.)

    I was previously very optimistic about Dapsone, but dealing with the severity of these symptoms while I take it would be pretty rough. Kinda wondering... is it just me?

    (Cross posted to Lymenet: http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/137366?#000002)
     
    Last edited: Oct 6, 2018

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