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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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The ME (ICC) vs CFS (Fukuda) Diagnosis Poll

I Meet the Criteria For

  • CFS according to the Fukuda Definition (1994) but not the ICC for ME

    Votes: 2 2.4%

  • ME according to the ICC for ME (2011) but not the Fukuda def for CFS

    Votes: 7 8.3%

  • I meet the criteria for both the ICC and the Fukuda definition

    Votes: 74 88.1%

  • I don't meet either definition

    Votes: 1 1.2%
  • Total voters
    84
Sing

Sing

Senior Member
Messages
1,782
Location
New England
Cort, will this poll find its way to researchers? I really want them to know what our patient group responses are. I realize this won't count as a scientific study, but as a strong indicator for which way to go with the research, I feel it makes a very valuable contribution.
 
Ember

Ember

Senior Member
Messages
2,115
Sing said:
Cort, will this poll find its way to researchers? I really want them to know what our patient group responses are. I realize this won't count as a scientific study, but as a strong indicator for which way to go with the research, I feel it makes a very valuable contribution.
Click to expand...

I think this poll is very misleading. Category 1 patients, "CFS according to the Fukuda Definition (1994) but not the ICC for ME," are hardly represented. Most of them are probably too high-functioning to be part of this community.
 
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