Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
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The Good moments / Bad moments

Discussion in 'General Symptoms' started by VillageLife, May 25, 2010.

  1. VillageLife

    VillageLife Senior Member

    United Kingdom
    The strangest thing I think about this illness is the fact you can have the good times and bad times.
    overall my health is bad and I am disabled.
    But there are moments when I'm so very poorly and think oh my godness im going to die.
    but there are also moments when I think oh my goodness I don't feel as bad right now!

    This is a very confusing part of this illness and is perhaps why other people find it so hard to understand.

    Eg: Sometimes I cant get out the car to make it just a few steps to the beach but then another time I will be able to do it.
    or, Some days I can just about struggle around my village shop and pay for something, another time I can't tolerate even going in the door of the shop.
    Sometimes just sitting in the car and going for a drive is to much, other times its ok.

    I guess this is the nature of this illness, how do you all cope with the change from good to bad to good and so on...?

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