Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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The Family Member ME/CFS Prevalence Poll Take II

Discussion in 'General ME/CFS News' started by Cort, Aug 12, 2010.

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Do one of the members of my extended family have an ME/CFS or ME/CFS Like condition?

  1. An immediate family member - father, mother, siblings, children has been diagnosed with ME/CFS

    131 vote(s)
    30.1%
  2. A significant other or partner has been diagnosed with ME/CFS

    17 vote(s)
    3.9%
  3. A secondary Relative - aunt, uncle, cousin, grandparents, etc. has been diagnosed with ME/CFS

    71 vote(s)
    16.3%
  4. A far flung relative has been diagnosed with ME/CFS

    15 vote(s)
    3.4%
  5. An immediate family member has mysterious fatigue but has not been diagnosed with ME/CFS

    90 vote(s)
    20.7%
  6. A significant other, etc. has mysterious fatigue not been diagnosed with ME/CFS

    19 vote(s)
    4.4%
  7. A secondary family member has mysterious fatigue but has not been diagnosed with ME/CFS

    42 vote(s)
    9.7%
  8. A far flung Relative has mysterious fatigue but has not been diagnosed with ME/CFS

    7 vote(s)
    1.6%
  9. No family members have been diagnosed with ME/CFS or have an undiagnosed fatiguing condition

    147 vote(s)
    33.8%
Multiple votes are allowed.
  1. justy

    justy Donate Advocate Demonstrate

    Messages:
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    U.K
    For the record:
    My biological mother, who I did not grow up with has been diagnosed with M.E. Her neice (my maternal cousin) has been diagnosed with M.E. I have M.E. My eldest daughter was sick at 15 and bedbound, at the same time that I had a severe relapse. She is much better now (age 21) but has poor stamina and other issues which have never resolved. Her onset, with slow but gradual recovery with no treatment in early 20's is very similar to my initial event 20 years ago. However I worry about her health as I have had a sevre relapse 6 years ago that I am still recovering from, after man y years of only being mildly affected.

    She seems to be going down a similar path. My youngest son is a worry also as he often feels very worn out and tired, especially from mental exertion - he finds piano lessons and practise exhausting at times - although he has no other symptoms currently.

    My eldest daughter and youngest son can both bend their thumbs back down to their wrists, and although I have never heard of this being an issue for people with EDS etc they also have both broken bones from minor falls. My daughter has broken one of her arms in four places on four separate occasions. My youngest son fell in a park last year and snapped two bones in his fore arm and had to have a bog operation to repair it, which had a long recovery time. My other two children who look very alike have no problems, no hypermobility and no broken bones ever.
     
    pibee likes this.
  2. Mel9

    Mel9 Senior Member

    Messages:
    566
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    1,403
    NSW Australia
     
  3. Mel9

    Mel9 Senior Member

    Messages:
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    1,403
    NSW Australia
    I answered nil members of family with cfs but there are two with bipolar
     
    rosie26 likes this.
  4. elliepeabody

    elliepeabody

    Messages:
    86
    Likes:
    401
    East of England
    No family members that I know of have been diagnosed with ME. However, there does seem to be an autoimmune theme in our family, Mother has psoriasis, and one of my brothers has Crohn's. My father had schizophrenia (I read some research recently that suggested an autoimmune link). Another brother possibly has BXO although no definite diagnosis yet. Sister has thyroid problems. Not a healthy family!

    Oh meant to add, one of my nephews has hypermobility in some of his joints (I have this but only in my index fingers)
     
  5. Maria1

    Maria1 Silence speaks volumes

    Messages:
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    749
    UK
    Interesting- my late brother had an undiagnosed psychotic disorder, most likely bipolar. I have a cousin with schizophrenia but no ME/CFS illnesses anywhere. I was thinking the other day about the energy surges and dips that go along with the mood cycles in bipolar.

    I got no further than thinking with ME/CFS the energy is low (without the mood) before my brain gave out.
     
    Sundancer, Mel9 and elliepeabody like this.
  6. stephen727

    stephen727

    Messages:
    1
    Likes:
    0
  7. JaimeS

    JaimeS Senior Member

    Messages:
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    11,982
    Silicon Valley, CA
    Sadly, there was no option for "two immediate family members have been diagnosed..."

    My mother, my older sister, and me.
     
    pibee, Tapanui 'Flu and Mrs Sowester like this.
  8. Mrs Sowester

    Mrs Sowester Senior Member

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    My mother has classic undiagnosed mild ME. I'm moderate. My daughter is mild at present.
    Also my paternal uncle had ME in the 80s and has recently had a diagnosis of connective tissue disease.
     
  9. Manganus

    Manganus Senior Member

    Messages:
    166
    Likes:
    401
    Canary islands
    For some reason, maybe cultural, fatigue is not what we tell each other, but rather debilitating and severe pain.

    My great grandmother (i.e. my maternal grandmother's mother) got a progeny of thirteen reaching adult age.

    Clearly nine of us thirteen seem similarly affected, although not diagnosed with ME, including immune system issues and/or psychiatric issues and/or connective tissue problems (like endometriosis, slipped discs, symphysis pubis dysfunction and semi-chronic tendinitis).

    In our family, it seems like we suffer from a "weakness" that's inherited from our mothers (mitocondrias...?). The three that are offspring of her son seem healthier. (An other son took his own life at age 37, childless, and I know nothing more about him.)

    Of us nine, three qualified for invalid pension, approximately at age 50, two left their professions and became house wifes in their 40:ies, and one was self-employed with a bed in the room beside the office, that was used many times each day.

    (I my view, ME/CFS might be the "end result" or a final stage of all this, but what do I know?)
     
    *GG* likes this.
  10. 2Cor.12:9

    2Cor.12:9 Senior Member

    Messages:
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    198
    My kids were 2,8, (both girls) 10 (boy) when I got sick. Middle daughter was dx'd with ME/CFS in her 20's. Youngest daughter has had numerous other health issues (autoimunne) but no CFS. Son is healthy.
     
  11. hamsterman

    hamsterman Senior Member

    Messages:
    148
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    191
    Los Angeles
    One immediate, one distant... and lotsa Auto-immune issues all-around. My heredity was a major red-flag to my endocrinologist.
     
  12. Sundancer

    Sundancer Senior Member

    Messages:
    353
    Likes:
    744
    Holland
    I could have written that, exactly the same.
    No ME or severe fatigue in my family, (parents and sibs). But depression abounds, they are all affected with it.

    I'm the youngest child, born to an elderly mum.

    But my son has it, even though he has no diagnosis.
     
  13. Chelby

    Chelby

    Messages:
    50
    Likes:
    77
    Same here - 2 aunties with severe bipolar. One of whose son has recently become housebound with debilitating fatigue. Also both my brother and 3 cousins have aspergers - every one of them developed MECFS between 16-18!

    EVERYONE in my family has had issues with orthostatic intolerance during youth. I have severe POTS and mild ME. I have had a constant headache for 4 years. My uncle had also had a treatment refractory disabling headache for years. He also continues to have very low blood pressure.

    I've seen both Dr Chris O'callaghan and Dr Neil McGregor - both said they were convinced my condition was inherited.
     

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