Sam7777
Senior Member
- Messages
- 115
Hello there. Can't get into all the details in just this post, but hoping to add more information if I can get engaged into any constructive direction in what I am searching for.
I have not been "officially" diagnosed with CFS. I do not seek to be. But, symptom wise, I am very unwell and meet many of the symptoms. I pondered the last 12 years (currently 23 yo) that I might have 1) IBD 2) Lyme 3) B12 deficiency 4) cancer 5) Food allergies ( I did have quite a few and got much of it under control until about six months prior to a "chelation mishap" [my health in of itself was declining even prior to a severe chelation mishap]) 6) CFS 7) Adrenal Fatigue 8) ulcers 9) many different psychological conditions such as borderline personality disorder, paranoia, depression, GAD
A) Are you a hypochondriac? B) Why do all these diseases have strong similarities? C) Why does every single environmental disease I suspected myself of having, have 1 or 2 major symptoms critically essential for meeting the criteria of diagnosis missing among my overall symptoms.
CFS- In and of itself ok maybe, but not as severe as at least 75% of the people I had read about. AND I never had genuine cognitive symptoms consistent with REAL CFS UNTIL taking ALA. Since when and why, aside from heavy metal redistribution, would an endogenous molecule in the body such as ALA CAUSE CFS? Not buying it.
Lyme- No periphereal neuropathy, facial ticks, no gradual onset, nothing until taking ALA. Not buying it.
B12 deficiency - No overt neuropathy, burning, tingling, etc
Endless normal blood work in general
IBD- No bleeding, just lots of chronic pain
Celiac- no history of issues of pain or depression prior to tooth. No stomach distress, abnormal Bowel movement. Not a thing until amalgam insertion at sixth grade.
Adrenal fatigue- no POTS after eating black hunza salt for several months and more carbs. Adrenal fatigue confused with negative consequences of paleo diet [see Durian Rider 30bad arguement]
Depression. etc- A harder one to get into detail in this post- suffice to say I took mind expanding Chinese herbs and realized that what I perceive in my waking reality is really "lacking" and though I mean well, I am not really in a position to "feel" sane or "normal". I.E autism references.
Also Gary Null points out some very clear faults and fallacies of the APA DSM-5, American Psychiatric Association Diagnostic Statistical Manuel 5. Which is putting it politely compared to what I would really like to say. The DSM has very, very poor physiological, systemic, bio-molecular explanations for organic disease pathology of the brain. It just says "Here it is, and its bad, and we blame genetics- Here are a bunch of clinical trials showing how people react to medicine, but no real research stating how or why the disease originated in the first place"
Conclusion via Hugh Laurey HouseEsque Scientific Induction - There is a high chance Boyd Haley, Wakefield, Etc, Etc are right about Mercury Controversy - I am chronically mercury poisoned.
My mother had over 12 silver amalgams prior to my conception, which from a young age she ground down in her sleep. She has COPD, borderline fibromyalgia, undiagnosed severe depression/psychological myriad, 200 page medical record, kidney adenoma, chronic vomiting and IBD symptoms, severe fatigue, long history since age of 14 of severe off and on alcoholism. She takes herbs and is "stable", has only 4 to six amalgams left in bottom teeth, top replaced with dentures.
Father had severe debilitating Ulceritive Colitis which created many hospital relapses and long term care incidents. He had severe fatigue. He had schizophrenia. Unfortunately this led to him passing away in an accident.
I had one....just one amalgam in the sixth grade. But, many many problems occurred there after. Development of severe vision reduction after having crystal clear vision, onset of 12 years of IBD symptoms, MRSA infection for 8 years, gained 130 lbs (lost it all too 3 years ago with interval fasting and GF CF paleo alkaline diet) [regained 35 lbs after chelation mishap]. Many issues occurred with this tooth. It was poorly done and eroded and fell out into my mouth. Ultimately at this point 12 years hence from the tooth being filled, it is a deeply eroded cavity with a portion of amalgam in the bottom well hid and difficult to defect, save except with a mirror and flashlight. But the amalgam is at least 10 mm x 3.5 mm in volume. Suffice to say 14 months ago I did a chelation program with supplements including a bottle and a half of Alpha Lipoic Acid, Incorrectly without frequent dose mercury chelation technique WITHOUT KNOWING AMALGAMS WERE STILL IN MY MOUTH.
I was a sickly person before this, I struggled to compete with normal healthy young adults. But I was not "disabled". I certainly was not after I had lost the weight. That had given me a life back and the ability to complete 1 n half years of difficult college training in environmental science, engineering, and chemistry.
Ironically before I chelated my BODY, I did 8 months of research studying how to chelate impurities out of waste water (chemical and environmental water quality and engineering).
Hence, Yes for the last 14 months I have had more or less debilitating neural, cognitive, and physical fatigue, disorientation, derealization since my attempt to use ALA. I am much more stable now, but compared to my old self, very very dumb, dull, nonfunctional mentally. When I first took the ALA I underwent some very severe anterograde amnesia events, and other various acute mental issues which slowly faded into a very dark dull brainless depression. Summer and better diet and supplements have improved this- some". No hope in this condition of finishing college/having career/ etc. Physically I feel like an old man. Nothing on the internet but CFS forums hits home with the kind of classic fatigue I experience.
I took several Chinese herbs that greatly increase testosterone in the body the same period in which I took ALA. 14 months ago my testosterone tested as 1112 ng/dL. According to Boyd Haley Phd. testosterone greatly enhances mercury toxicity by impeding excretion in comparison to estrogen. It is evident in the autism rate of 4 to 1 boys to girls.
What I now will list below is a strategy that I plan to implement in order to chelate mercury and other heavy metals out of my body.
1) Find a doctor in the greater NYC area that can legitimately remove my amalgam containing tooth.
2) Get my diet under control and alkaline, get belly fat down, and open up detoxification function of my organs with my past diet I used to lose the weight. Engage in high intensity juicing, limited water fasting, and tiered calorie restriction interval fasting. This will control rampant hormonal imbalances that make mercury excretion more difficult.
3) Complete enough of Dr. Andrew Cutler's chelation therapy CORRECTLY to get past the severe "dumping phase" and into a plateau and stable phase.
4) Upon reaching a stable phase, Use a series of very strong well consulted high dose Traditional Chinese Medicine herbal formulas and Western Detox herb formulas to repair the damage done by mercury and aid the overall immune system.
5) Maintenance dose chelation and herbs indefinitely because we live in a very polluted world......
This is my Chelation/Methlyation/Neurogensis Stack
Modified Citrus Pectin...essential to bind mercury exiting the biliary system and into the colon to prevent reabosorption
Chlorell...careful with this one as per Cutler
Chlorella Growth Factor... relatives having huge success with this
Humifulvate tablet and liquid + Stainless Steel Water Distiller
DMSA @ 3 hour dosing interval x 8 daily|5 days on|5 days off minimum
ALA and R-LA @ 3 hour dosing interval x 8 daily|5 days on|5 days off minimum
Sodium Alginate
Tri-Boron w/ Cysteine or MSM
Selenium+Methionine and Cysteine
Activated Folate
Activated Niacin
Subcutaneous Injectable Methyl-B12 without any Aluminum or Thimerosol!!!
N-AC to tolerance, but very essentially..and aggressively.
IntraMax Liquid Multi-mineral
Trimethylglycine
Purified covalently bound Silica
Molybdenum and Zinc for Copper excretion
Transdermal, Lyposomal, and/or Injectable Glutathione
Ubiquinol
L-Carnosine
Aspartate
ALCAR
SAM-e
DMAE
GrapeSeed, Cacao, Pycnogenol, Cinnamon Essential Oil OPC's.. lower brain inflammation
Phosphatidylecholine/serine
Bacopa Extract for at least 24 weeks...this one really is the "nerve regenerator"
Ashwagandha Extract
Lion's Mane Mushroom ..same as bacopa definitely
Gotu Kola Extract/Gingko
Uridine-5'-monophosphate
Activated Charcoal
Creatine
I believe this post will stir some pots and rattle some cages. All good and fine. I need constructive input and criticism to point me in the right direction, as I understand that what I am dealing with is indeed extremely deadly and resistant to treatment. Information is controversial, derisive, poorly available to the public, difficult to understand for the laymen, and misleading.
I am not a frequent poster of Phoenix. I am aware of the wealth of information in the archives here. Much of this I have yet to read, and I know it would reflect the pro's and con's of my statements in this post. I need people to see this information regardless, however. Links, peer reviewed literature, refutement, support, contention, studies, precedents, videos, all welcome and encouraged.
I have not been "officially" diagnosed with CFS. I do not seek to be. But, symptom wise, I am very unwell and meet many of the symptoms. I pondered the last 12 years (currently 23 yo) that I might have 1) IBD 2) Lyme 3) B12 deficiency 4) cancer 5) Food allergies ( I did have quite a few and got much of it under control until about six months prior to a "chelation mishap" [my health in of itself was declining even prior to a severe chelation mishap]) 6) CFS 7) Adrenal Fatigue 8) ulcers 9) many different psychological conditions such as borderline personality disorder, paranoia, depression, GAD
A) Are you a hypochondriac? B) Why do all these diseases have strong similarities? C) Why does every single environmental disease I suspected myself of having, have 1 or 2 major symptoms critically essential for meeting the criteria of diagnosis missing among my overall symptoms.
CFS- In and of itself ok maybe, but not as severe as at least 75% of the people I had read about. AND I never had genuine cognitive symptoms consistent with REAL CFS UNTIL taking ALA. Since when and why, aside from heavy metal redistribution, would an endogenous molecule in the body such as ALA CAUSE CFS? Not buying it.
Lyme- No periphereal neuropathy, facial ticks, no gradual onset, nothing until taking ALA. Not buying it.
B12 deficiency - No overt neuropathy, burning, tingling, etc
Endless normal blood work in general
IBD- No bleeding, just lots of chronic pain
Celiac- no history of issues of pain or depression prior to tooth. No stomach distress, abnormal Bowel movement. Not a thing until amalgam insertion at sixth grade.
Adrenal fatigue- no POTS after eating black hunza salt for several months and more carbs. Adrenal fatigue confused with negative consequences of paleo diet [see Durian Rider 30bad arguement]
Depression. etc- A harder one to get into detail in this post- suffice to say I took mind expanding Chinese herbs and realized that what I perceive in my waking reality is really "lacking" and though I mean well, I am not really in a position to "feel" sane or "normal". I.E autism references.
Also Gary Null points out some very clear faults and fallacies of the APA DSM-5, American Psychiatric Association Diagnostic Statistical Manuel 5. Which is putting it politely compared to what I would really like to say. The DSM has very, very poor physiological, systemic, bio-molecular explanations for organic disease pathology of the brain. It just says "Here it is, and its bad, and we blame genetics- Here are a bunch of clinical trials showing how people react to medicine, but no real research stating how or why the disease originated in the first place"
Conclusion via Hugh Laurey HouseEsque Scientific Induction - There is a high chance Boyd Haley, Wakefield, Etc, Etc are right about Mercury Controversy - I am chronically mercury poisoned.
My mother had over 12 silver amalgams prior to my conception, which from a young age she ground down in her sleep. She has COPD, borderline fibromyalgia, undiagnosed severe depression/psychological myriad, 200 page medical record, kidney adenoma, chronic vomiting and IBD symptoms, severe fatigue, long history since age of 14 of severe off and on alcoholism. She takes herbs and is "stable", has only 4 to six amalgams left in bottom teeth, top replaced with dentures.
Father had severe debilitating Ulceritive Colitis which created many hospital relapses and long term care incidents. He had severe fatigue. He had schizophrenia. Unfortunately this led to him passing away in an accident.
I had one....just one amalgam in the sixth grade. But, many many problems occurred there after. Development of severe vision reduction after having crystal clear vision, onset of 12 years of IBD symptoms, MRSA infection for 8 years, gained 130 lbs (lost it all too 3 years ago with interval fasting and GF CF paleo alkaline diet) [regained 35 lbs after chelation mishap]. Many issues occurred with this tooth. It was poorly done and eroded and fell out into my mouth. Ultimately at this point 12 years hence from the tooth being filled, it is a deeply eroded cavity with a portion of amalgam in the bottom well hid and difficult to defect, save except with a mirror and flashlight. But the amalgam is at least 10 mm x 3.5 mm in volume. Suffice to say 14 months ago I did a chelation program with supplements including a bottle and a half of Alpha Lipoic Acid, Incorrectly without frequent dose mercury chelation technique WITHOUT KNOWING AMALGAMS WERE STILL IN MY MOUTH.
I was a sickly person before this, I struggled to compete with normal healthy young adults. But I was not "disabled". I certainly was not after I had lost the weight. That had given me a life back and the ability to complete 1 n half years of difficult college training in environmental science, engineering, and chemistry.
Ironically before I chelated my BODY, I did 8 months of research studying how to chelate impurities out of waste water (chemical and environmental water quality and engineering).
Hence, Yes for the last 14 months I have had more or less debilitating neural, cognitive, and physical fatigue, disorientation, derealization since my attempt to use ALA. I am much more stable now, but compared to my old self, very very dumb, dull, nonfunctional mentally. When I first took the ALA I underwent some very severe anterograde amnesia events, and other various acute mental issues which slowly faded into a very dark dull brainless depression. Summer and better diet and supplements have improved this- some". No hope in this condition of finishing college/having career/ etc. Physically I feel like an old man. Nothing on the internet but CFS forums hits home with the kind of classic fatigue I experience.
I took several Chinese herbs that greatly increase testosterone in the body the same period in which I took ALA. 14 months ago my testosterone tested as 1112 ng/dL. According to Boyd Haley Phd. testosterone greatly enhances mercury toxicity by impeding excretion in comparison to estrogen. It is evident in the autism rate of 4 to 1 boys to girls.
What I now will list below is a strategy that I plan to implement in order to chelate mercury and other heavy metals out of my body.
1) Find a doctor in the greater NYC area that can legitimately remove my amalgam containing tooth.
2) Get my diet under control and alkaline, get belly fat down, and open up detoxification function of my organs with my past diet I used to lose the weight. Engage in high intensity juicing, limited water fasting, and tiered calorie restriction interval fasting. This will control rampant hormonal imbalances that make mercury excretion more difficult.
3) Complete enough of Dr. Andrew Cutler's chelation therapy CORRECTLY to get past the severe "dumping phase" and into a plateau and stable phase.
4) Upon reaching a stable phase, Use a series of very strong well consulted high dose Traditional Chinese Medicine herbal formulas and Western Detox herb formulas to repair the damage done by mercury and aid the overall immune system.
5) Maintenance dose chelation and herbs indefinitely because we live in a very polluted world......
This is my Chelation/Methlyation/Neurogensis Stack
Modified Citrus Pectin...essential to bind mercury exiting the biliary system and into the colon to prevent reabosorption
Chlorell...careful with this one as per Cutler
Chlorella Growth Factor... relatives having huge success with this
Humifulvate tablet and liquid + Stainless Steel Water Distiller
DMSA @ 3 hour dosing interval x 8 daily|5 days on|5 days off minimum
ALA and R-LA @ 3 hour dosing interval x 8 daily|5 days on|5 days off minimum
Sodium Alginate
Tri-Boron w/ Cysteine or MSM
Selenium+Methionine and Cysteine
Activated Folate
Activated Niacin
Subcutaneous Injectable Methyl-B12 without any Aluminum or Thimerosol!!!
N-AC to tolerance, but very essentially..and aggressively.
IntraMax Liquid Multi-mineral
Trimethylglycine
Purified covalently bound Silica
Molybdenum and Zinc for Copper excretion
Transdermal, Lyposomal, and/or Injectable Glutathione
Ubiquinol
L-Carnosine
Aspartate
ALCAR
SAM-e
DMAE
GrapeSeed, Cacao, Pycnogenol, Cinnamon Essential Oil OPC's.. lower brain inflammation
Phosphatidylecholine/serine
Bacopa Extract for at least 24 weeks...this one really is the "nerve regenerator"
Ashwagandha Extract
Lion's Mane Mushroom ..same as bacopa definitely
Gotu Kola Extract/Gingko
Uridine-5'-monophosphate
Activated Charcoal
Creatine
I believe this post will stir some pots and rattle some cages. All good and fine. I need constructive input and criticism to point me in the right direction, as I understand that what I am dealing with is indeed extremely deadly and resistant to treatment. Information is controversial, derisive, poorly available to the public, difficult to understand for the laymen, and misleading.
I am not a frequent poster of Phoenix. I am aware of the wealth of information in the archives here. Much of this I have yet to read, and I know it would reflect the pro's and con's of my statements in this post. I need people to see this information regardless, however. Links, peer reviewed literature, refutement, support, contention, studies, precedents, videos, all welcome and encouraged.