Choline on the Brain? A Guide to Choline in Chronic Fatigue Syndrome
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Success on Valacyclovir at 3.5 Months!! - Plus some Questions...

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by hopeandsparkles, May 27, 2017.

  1. Janice Hargreaves

    Janice Hargreaves

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    It is good to hear about progress and changes. Thank you Stephano75 and 2Cor.12:9.
    I guess I am concerned that for sample sizes of 1 or 2 then statistical power and hence value maybe v low? My maths is not my strong part.

    So for what it's worth........ I'm recovering from flu. In a weird way I think this was good.
    I haven't had flu for over 15 yrs.?
    In my unprofessional tin pot way I felt that the green gunk I coughed up was a good sign that my body was producing the needed immune response. From wiki it mentioned greeness is from the peroxidases produced by the white cells.

    So although I am not recovered from ME I do feel some improvement in different ways, eg much reduced armpit throbs, much reduced heart palpitations although this still returns in minor way if I try too hard. And much reduced bone pain.

    I haven't felt much energy return as yet but I'm trying very hard not to keep ignoring what my body trying to tell me.
    I'm an optimist and feel that if I stop the crashes as much as possible my body has the best chance to get its self back in balance?

    I'm working at slotting in two more 10 - 20 min horizontal sessions in the day since I really feel benefit of being vertical in about 4 hrs stretches, then topping up my battery by going horizontal in shut down mode with deep abdominal calm breathing and relaxing all muscles.

    I'm wishing you all the very best of luck.
     
    stephano75, 2Cor.12:9 and Binkie4 like this.
  2. Binkie4

    Binkie4 Senior Member

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    How long have you been on the antiviral@Janice Hargreaves? And which one? If you don't mind saying. Maybe acyclovir? My memory not good enough to be sure.



    EDIT: I see you posted this info earlier. Apologies. I am curious because the heart issues I have are worsening and need surgery soon so it is hard to assess effects of acyclovir. I am very breathless and that is not improving but I think it is the heart. Good wishes anyway.
     
    Last edited: Jan 9, 2018
    MEMum likes this.
  3. Janice Hargreaves

    Janice Hargreaves

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    Thanks @Binkie4

    All the best to you too.
     
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  4. stephano75

    stephano75

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    Hi @2Cor.12:9 - no, am not taking anything else. Re dosage - I was on the 1000mg for a couple of months and noticed benefits. I do think they (benefits) increased somewhat when I increased the dose. My doctor's experience is certainly that 2000mg sees people getting best results. Cheers, S.
     
    2Cor.12:9 likes this.
  5. el_squared

    el_squared Senior Member

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    Great news! I wanted to ask about what you said about "a brand" of generic Valtrex. Did you mean you switched to Valtrex, and not a generic? Or did you switch to a generic that worked better? I have recently begun taking generic Valtex made by Aurobindo.
    Thanks!
     
  6. Binkie4

    Binkie4 Senior Member

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    Hi @Janice Hargreaves
    Just to say that 9 months in, I have all my fingers crossed, but despite the heart, I believe there is some improvement. There would be more if I could get my sleep sorted out but pem seems less, breathlessness less, a bit less OI. I have put make up on twice in the last week so energy is a bit more. Cognitive function not yet improved. Am still lying flat most of the day but have tolerated two hospital admissions and emerged intact although I did have saline both times. Am afraid to be too hopeful but there seems to be a small group here who are responding. Good wishes all.
     
    shannah likes this.
  7. shannah

    shannah Senior Member

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    Great signs @Binkie4
    I so hope it continues for you.
    I too have had to really search for those tiny improvements, barely noticeable, but still there!
     
    Binkie4 likes this.
  8. bread.

    bread.

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    hi,

    and congratulations to your success!

    Did you "just" tried it or did you have any bloodwork that has driven to in the direction of Valtrex? If so, which ones?

    Thank you!

    Christoph
     
  9. Janice Hargreaves

    Janice Hargreaves

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    I've been on Aciclovir since beginning of August 2017. I take 400mg 3 times a day. I also take daily ~ 250mg Beta hydroxybutyrate, vit D and B12 injection self administered every two weeks.
    I feel that recurrent armpit throbs, shin bone aches, sore throats, and pains at sites of old injuries have all pretty much gone.
    So the quality of my life has definitely improved although I haven't seen much energy increase .....yet.

    I am an eternal optimist and feel that I am coming alive again however slowly. I can't help but feel excited....

    I've started to use a heart rate monitor to stop me unknowingly tip into aerobic metabolism for too long........not too sure about this?
    Problem is the cheap £30 monitor is not very reliable so am looking at getting maybe a Garmin. ?
    I do tend to want to take the monitor off since it depressed me terrribly when I tried a few years ago, so I'm very aware of that problem.

    I hope that may help?
    Very good luck and warm wishes to all.
     
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